Hi Christel, are you having a reconstruction? In my case I am having chemo first like you, and also want double mastectomy. I have spoken to the genetics councillor and will have testing down the track a bit, but my feeling is that as I have already developed breast cancer at 41, I am at higher than usual risk of developing it again whether I have the gene or not. We have many genes that we do not yet know the function of. I have seen the plastic surgeon that will do my immediate reconstruction at the time of my mastectomy. The plan for me is a left mastectomy with implant reconstruction initially, followed by radiotherapy. After radiotherapy, I will have the implant removed, and right mastectomy with Diep flap (my own tissue from my tummy) reconstruction on both sides. This is because the radiotherapy can affect the tissue reconstruction and I don't have enough tissue to do it again if ther are problems. All the best to you, hopefully you will get a clear plan from your treatment team and feel a bit better once you know what's happening. We are all here for you
Kate x