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Bon_Bon's avatar
Bon_Bon
Member
8 years ago

Getting overies out??

I am thinking to lessen the risk of overian cancer, to get them out, I have both breasts off and nose clearence, on the dreaded Tamoxifen 
  • I had my ovaries out on December 20 (actually ovaries, tubes, uterus and cervix) - procedure went well and recovery so far is good.  I am BRCA1 positive and removed my ovaries and tubes as risk reduction (my breast surgeon and I chatted about removing the uterus and my decision was made from our discussions).  Op was done through the public system by a specialist onco-gynacologist with minimal wait time due to the gene mutation.  My cancer was a grade 3 triple negative, I had a lumpectomy in October 2016, did 4 of 6 chemo cycles and radiotherapy x 20.  Chemo had kicked me into menopause so I have been struggling with that over the last 8 months or so anyway and nothing really has changed other than I am extremely emotional - however this could be because I've been off work and finally processing everything that has happened over the last year.  My sister is also BRCA1 positive, has not had breast cancer and had the same procedure in November.

    I am at peace with my decision as the worry about ovarian cancer (which a paternal aunt had) and the inability to screen for it well enough, was not something I wanted to have in the back of my mind....
  • I decided to have mine out just before Christmas. I haven’t skipped a beat, everything went well and quick recovery. I was not interested in having those awful Zolodex injections any longer. I too was pre menopausal so just Femara and oral chemo meds now. No reduction in hot flushes unfortunately.
  • I got rid of mine. Though I was perimenopausal before hand the last step was a doozy.
    I don't know if I have the gene, but my cancer did return after 10 years. I'd already had 2mx, chemo and Tamoxifen. This time more surgery, chemo rads and Femara. The last straw for me as the talk of having Zolodex for three years. Thanks, but I'd rather they come out.
    No surgery is without risk and being crashed into full oldladydom has not been comfortable. Marg
  • If you carry a BRAC 1 or 2  faulty gene then yes it would most definitely assist but not elimate the risk of ovarian cancer. 

    If you are pre menopause and would like to change to an aramatose inhibitor then that can be an option or have ovaries knocked out with drugs or radiotherapy is another.   This needs to be discussed with your oncologist or breast surgeon. 

    You would need a referral to an onco-gynacologist to discuss all risks and appropriate surgery. We can be quick to say ...take it all...but knowing real risks and risk reduction surgery  that is really necessary is best to discuss with appropriate specialists. A genetic referral to discuss risk factors is enlightening and certainly reduced my anxiety after testing gene negative.
    Kath x