The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor. 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and endometriosis- HELP!!","id":"message:192616","revisionNum":1,"repliesCount":6,"author":{"__ref":"User:user:23183"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:surgery"},"conversation":{"__ref":"Conversation:conversation:192616"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:192616"},"body@stripHtml({\"truncateLength\":200})":"Hi everyone, totally new to this amazing network and this whole new world of cancer & DCIS! I am looking for advice to to hear from ANYONE who may have been through something similar to what I a...","body@stringLength":"1735","rawBody":"Hi everyone,
totally new to this amazing network and this whole new world of cancer & DCIS!
I am looking for advice to to hear from ANYONE who may have been through something similar to what I am going through.
two months ago I found a lump in my right breast and the GP sent me off to the experts. Biopsy’s, ultrasounds, MRIs, mammograms later it’s DCIS. I am run through the options and go into for a wide local.
During this surgery they find a 0.8m tumor and remove and take wider margins. However they do not come back clear, so the following week I go back in for some more “housekeeping” and wider margins.
I was told yesterday that those margins are clear, hooray!
The direction now is that they want to do 5 weeks of radiation and put me on Tamoxifen for 5-10 years. HOWEVER, I have endometriosis and have been told tamoxifen will heighten my endometriosis. Along with the standard early menopause (should say I am 39 years old with one kid, happy with one child, based in Newcastle NSW).
As this has already been such a whirlwind, I am trying to find resources or people who have had to go into early menopause - did you get endo side effects? Or if you already had endo, did you opt to have your ovaries etc removed to stop any side effects/pain?
Or did you opt for a mastectomy instead? Soooo many questions!
I am discussing with all doctors and specialists but haven’t ever spoken to another person in my position. Please PM me or comment if you want to share your experience
totally new to this amazing network and this whole new world of cancer & DCIS!
I am looking for advice to to hear from ANYONE who may have been through something similar to what I am going through.
two months ago I found a lump in my right breast and the GP sent me off to the experts. Biopsy’s, ultrasounds, MRIs, mammograms later it’s DCIS. I am run through the options and go into for a wide local.
During this surgery they find a 0.8m tumor and remove and take wider margins. However they do not come back clear, so the following week I go back in for some more “housekeeping” and wider margins.
I was told yesterday that those margins are clear, hooray!
The direction now is that they want to do 5 weeks of radiation and put me on Tamoxifen for 5-10 years. HOWEVER, I have endometriosis and have been told tamoxifen will heighten my endometriosis. Along with the standard early menopause (should say I am 39 years old with one kid, happy with one child, based in Newcastle NSW).
As this has already been such a whirlwind, I am trying to find resources or people who have had to go into early menopause - did you get endo side effects? Or if you already had endo, did you opt to have your ovaries etc removed to stop any side effects/pain?
Or did you opt for a mastectomy instead? Soooo many questions!
I am discussing with all doctors and specialists but haven’t ever spoken to another person in my position. Please PM me or comment if you want to share your experience
thanks for listening 😊
","customFields":[]},"Conversation:conversation:192616":{"__typename":"Conversation","id":"conversation:192616","solved":false,"topic":{"__ref":"ForumTopicMessage:message:192616"},"lastPostingActivityTime":"2021-04-27T19:12:10.000-07:00","lastPostTime":"2021-04-27T19:12:10.000-07:00","unreadReplyCount":6,"isSubscribed":false},"ModerationData:moderation_data:192616":{"__typename":"ModerationData","id":"moderation_data:192616","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:192616_1":{"__typename":"Revision","id":"revision:192616_1","lastEditTime":"2021-04-26T17:45:27.000-07:00"},"ForumReplyMessage:message:192618":{"__typename":"ForumReplyMessage","id":"message:192618","conversation":{"__ref":"Conversation:conversation:192616"},"author":{"__ref":"User:user:22796"},"revisionNum":1,"uid":192618,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:surgery"},"subject":"Re: DCIS and endometriosis- HELP!!","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:192618"},"parent":{"__ref":"ForumTopicMessage:message:192616"},"body":"Hi,
Im not as young as you. 49. I wasnt in menopause though i was kindof praying for it due to 2 migraines a month and heavyish periods. No endo. By all accounts /family history i wouldnt have gone through menopause till i was 55.
Im now in chemical menopause from chemo and maintained by monthly injection. I guess i could opt for my ovaries out although i havent been offered it and dont want it at the present time. I had a large hormone positive tumour so im on an AI called aromisin to remove the remaining oestrogen from my body. You can only have these if menopausal. Im not sure what the difference between tamoxifin and ais is. I think i read somewhere that tamoxifin increases bone density which is opposite of ais. Is it because they dont want you to be in menopause due to your age and stage of your breast cancer? Is it less brutal? Oestrogen is something that protects your joints and ligaments. Dcis i believe is noninvasive so early detected which is great. If you dont have a cycle does it stop endo?
Sorry more questions than answers.
Maybe discuss with your team. Removing your ovaries might give you more options but there are side effects youd need to consider.
Great to hear surgery went well. Michele","body@stringLength":"1325","rawBody":"Hi,
Im not as young as you. 49. I wasnt in menopause though i was kindof praying for it due to 2 migraines a month and heavyish periods. No endo. By all accounts /family history i wouldnt have gone through menopause till i was 55.
Im now in chemical menopause from chemo and maintained by monthly injection. I guess i could opt for my ovaries out although i havent been offered it and dont want it at the present time. I had a large hormone positive tumour so im on an AI called aromisin to remove the remaining oestrogen from my body. You can only have these if menopausal. Im not sure what the difference between tamoxifin and ais is. I think i read somewhere that tamoxifin increases bone density which is opposite of ais. Is it because they dont want you to be in menopause due to your age and stage of your breast cancer? Is it less brutal? Oestrogen is something that protects your joints and ligaments. Dcis i believe is noninvasive so early detected which is great. If you dont have a cycle does it stop endo?
Sorry more questions than answers.
Maybe discuss with your team. Removing your ovaries might give you more options but there are side effects youd need to consider.
Great to hear surgery went well. 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MUST READ IF FACING MASTECTOMY EARLY BREAST CANCER DIAGNOSIS DCIS LCIS","conversation":{"__ref":"Conversation:conversation:72631"},"id":"message:72631","revisionNum":1,"uid":72631,"depth":0,"board":{"__ref":"Forum:board:surgery"},"author":{"__ref":"User:user:12563"},"metrics":{"__typename":"MessageMetrics","views":308},"postTime":"2014-01-31T16:59:26.000-08:00","lastPublishTime":"2014-01-31T16:59:26.000-08:00","body@stripHtml({\"removeProcessingText\":true,\"removeSpoilerMarkup\":true,\"removeTocMarkup\":true,\"truncateLength\":200})":" I am writing this letter in the hope that the following story will help anyone facing a mastectomy or an early diagnosis of breast cancer. \n Women are being diagnosed with breast cancer every day 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right breast doesn't feel the same anymore ... Is this the new norm post lumpectomy, chemo & rad?","conversation":{"__ref":"Conversation:conversation:222689"},"id":"message:222689","revisionNum":1,"uid":222689,"depth":0,"board":{"__ref":"Forum:board:surgery"},"author":{"__ref":"User:user:19982"},"metrics":{"__typename":"MessageMetrics","views":279},"postTime":"2018-08-20T08:25:51.000-07:00","lastPublishTime":"2018-08-20T08:25:51.000-07:00","body@stripHtml({\"removeProcessingText\":true,\"removeSpoilerMarkup\":true,\"removeTocMarkup\":true,\"truncateLength\":200})":"I had my lumpectomy in June 2017 and lymph nodes in right arm removed in July. Chemo stopped at Xmas and rad in March. Now I am just on Herceptin until Oct. 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