Hi @"Bon Bon" - I also had a skin-sparing, nipple sacrificing double mastectomy. I had bilateral lobular carcinoma - and lots of it! So I had no option but to have the double, which I was actually quite happy about for the same reasons as you made your decision.
I also had a full axillary node clearance on one side.
Both my breast surgeon and plastic surgeon told me that with the skin-sparing mastectomy, they remove as much breast tissue as possible - as close to 100% of it as possible - but that there is always a minimal amount of tissue that is adhered to the skin that's basically impossible to remove without making your skin so thin that a reconstruction would not be possible.
They told me that decades ago, a mastectomy was brutal - removing absolutely everything, all tissue, skin everthing - and leaving women quite disfigured. These days, they are much more aware that many (definitely note all) women want a good reconstruction, and even those that are happy to be flat and fabulous, want to have a 'kinder' result.
You'd really need to talk to your breast surgeon about why he/she has left so much breast tissue. I would hope that it would be a conscious decision taking into account your type of breast cancer, the chances of recurrence and your choice of reconstruction.
Are you going to have any follow-up treatment? Chemo, radio or hormone therapy?
All the best,
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