Hi Sue,
You are making some difficult decisions. I went with a bilateral for reasons similar to what you have said. It is a harsh reality though willingly removing a breast and forever losing the natural sensation. I have found that a huge loss, not regretting what I have done, but more a deep sadness. We are all different but I thought it was worth mentioning. I also wanted the whole ordeal over quickly as possible, I had my mast/recon April 2013 and am still not quite finished. So it can be a long process depending what you do.
I went public, you can read my story by clicking my name and scroll down to earlier stories. The decision really is made not determined by the system, but by you and your surgeon.
You might also find this blog topic useful where members are discussing prophylactic options, there is a fair bit of talk in the recon group about this topic so if you need more directions just ask.
http://www.bcna.org.au/node/61026/blog/tag/prophylactic%20mastectomy
Like you I also had large breasts so was very happy to go with immediate reconstruction. If you are interested in recon you might be a candidate too (if yes this may impact your decision to do one or both breasts) but you might need to ask for this if it isnt offered at your appointment. There are lots of considerations, there is a list of 'questions to ask' also in the recon group that might be helpful.
If you are thinking to go with reconstruction and public, if you choose a delayed procedure (not at the time of mastectomy) you may be without 1 or both breasts for a few years waiting for recon. So that might also contribute to your decision. Some people are fine with that, I wasnt.
I hope I havent confused you, just shout if I can help further.
All the best, Louise XXX
