Dear @Abbydog
Anything that messes around with nerve endings is a bit unpredictable so PN symptoms can vary. Mine started with my fingers - classic tingling, right on the tips. But that was soon overtaken by a feeling of ‘disconnection’ in my feet, mainly the toes and back of the heel. The odd feelings however rapidly became painful.
After a very unpleasant period of a few weeks, when walking looked seriously compromised, the pain reduced, then vanished but I was left with an assortment of odd feelings - wearing three pairs of thick socks; walking on sponge rubber; a degree of numbness; occasional ‘burning’ sensations. These sensations have abated a bit over the years but can come back from time to time - the last week of unusual humidity in Melbourne hadn’t helped. Oh, and I still have a tiny amount of tingling in my fingertips!
The ‘ just not right’ and disconnected feeling sounds very familiar. Problem is, nearly all advice about PN is how to deal with pain. Understandable but not much use if you don’t have any. My odd-feeling feet don’t stop me doing much but yes, I’d love to have them feel normal again.
Vitamin B may have helped at the painful stage - I still take it, just in case.
Certainly worth discussing with your oncologist. A side effect not noted is a side effect that won’t get attention.
Best wishes
