Forum Discussion
primek
9 years agoMember
Unwell from chemo
This was posted on another blog from @Jenv who is hospital after her 1st chemo and was experiencing breathlessness. Thought Jenv could do with some bc sister support at what must be a scary time.
Hi primek,
Well, am actually in hospital...got up to A & E where i sat for 4 hours while they took bloods, did a chest xray and chest ct scan..they ruled out clot in lung thank god...so am on oxygen therapy, have had some steroids pushed through IV, plus some fluid removing concoction which will make me go to the loo constantly....did an ecg to check heart and proceeded to tell me i could have damage to heart...Do i want to be resusitated? Well, i hadn't looked at that yet, but i probably should do an advance care plan...not quite ready to leave this world yet. So i am stupid, should have gone up at least a week ago instead of thinking i could ride it out...still didnt take myself to A & D til saturday when i couldn't stand it any longer...obviously don't muck around thinking it will pass. xx
Hi primek,
Well, am actually in hospital...got up to A & E where i sat for 4 hours while they took bloods, did a chest xray and chest ct scan..they ruled out clot in lung thank god...so am on oxygen therapy, have had some steroids pushed through IV, plus some fluid removing concoction which will make me go to the loo constantly....did an ecg to check heart and proceeded to tell me i could have damage to heart...Do i want to be resusitated? Well, i hadn't looked at that yet, but i probably should do an advance care plan...not quite ready to leave this world yet. So i am stupid, should have gone up at least a week ago instead of thinking i could ride it out...still didnt take myself to A & D til saturday when i couldn't stand it any longer...obviously don't muck around thinking it will pass. xx
11 Replies
- primekMemberGlad you are home @Jenv but it sure sucks having a tear in the lung. No wonder you were breathless. No reason now to think you would suddenly get heart failure. I did have decreased cardiac output from chemo and herceptin but it has returned to normal now. You'll take a little while to recover from this. The lessened learned for all reading is report everything. It may have changed nothing with your outcome Jenv but you would have suffered a bit less I like to think. Rest. Regroup and let people help. Your oncologist will do the best for you as an individual. Kath x
- LMK74MemberJenv, glad to hear your home and staying positive. Its scary not knowing how all these drugs will effect us. Im scared about heart problems as i had a heart attack last year. Chemo sucks!.
- JenvMemberHome from hospital after spending weekend having oxygen therapy, IV steroids to help breathing and IV pushed lasex to remove fluid.
Apparently my hit of chemo caused a small tear or leak into left lung which is affecting lympatic system in lung making breathing difficult....after liasing with my oncologist doctors decided to send me home where upon my oncologist will ring me in regards to next course of action....joy, so still waiting and now back home with no oxygen and still breathing issues and i could have heart failure at any minute...could it get any better.....but through it all, hasn't got me down...spend my time doing lots of knitting and crosswords...a dear friend comes in once a week to clean my house, hubby does what he can and i always have girlfriend or hubby if i have to go into town as well as people making food..people really rally if u let them...anyway hopefully get sorted soon. - primekMember@Jenv Glad things are on the improve for you.
- melclarityMember@Jenv Glad to hear you went to Hospital and got to the bottom of things, the ladies are right, there's no way of knowing how you are going to react and if it is normal or not. I think many of us shrug things off and think Ohhh we'll be ok! which is great and what gets us through, but then these things crop up. So communicate everything with your team. My first FEC I was so ill for 10 days, so for the 2nd, 3rd and 4th ones I went straight from infusion to admitted for a few days each time, I was still very ill but managed a little better with being in hospital that few days on a drip as I couldnt even tolerate liquid. Breathlessness was also something I felt right through FEC and Taxol, plus increased hate rate. Thank goodness it all stops when you finish. Hang in there! Nurture you and look after you. Hugs Melinda xo
- JenvMemberHi Primek, thanks for posting my original comment for me....i never know where or how to put them.
- JenvMemberThanks all, its awesome knowing you are all out there giving support and giving no nonsence advice...and fairydust you are right, this is just a hiccup...mind you, i wouldn't mind taking oxygen home with me, makes a difference.....anyway the hospital people here will ring my oncologist in morning and let him know what treatment they been giving and i guess see what he says....trouble is I'm in local hospital in Hamilton Vic and my oncologist is an hour away in Warrnambool at this beautiful new cancer hospital, built last year.
Hopefully will be home tomorrow sometime. - fairydustMember@jenv hope things are on the mend. The problem is no one knows for certain how each individual person responds to chemo. Well they will be taking very good care of you . What a frightening start. I had a friend who had rash from head to toe from a reaction to chemo. The oncologist changed the chemo to another chemo drug no problems .
You have had a hiccup but knowing wonders of todays medicine you willbe back on your feet in not time. keep well - Brenda5MemberIt is very frightening not being able to get enough breath. I got the feeling there are lots of side effects with chemo which the specialists would rather not hear and just hope you get through it and then its not their problem once the treatments are all finished. Don't worry about the do you want to be resuscitated thing as we all get asked that one. I opted for yes in the case of if I had something curable like pneumonia of course I want to be kept alive with the promise of a recovery. Don't worry too much about the possibility of the heart damage as hey as we get older we all carry a little bit of that around. Just get yourself better and back home soon and take things easy. The hardest thing to learn in cancer treatment is patience. The patience to take things easy and just let yourself recover bit by bit. Hang in there Jen. <3
- ZoffielMemberThat's no good, Jen! Hoping it would all go away is the sort of thing I would do. Well, you do, don't you. The resuscitation thing is a bit harsh though, right back into reality with a thud.
Hopefully by tomorrow things will settle down a bit. This really is a shit of a disease.