Hi everyone who has been supporting me on this quest for answers! Yes the 2nd opinion oncologist was much more supportive, agreeing that I needed to firstly exhaust all answers from neuro team, then get WELL, then make a decision on when/if I return to chemo, but she said definitely not to have the AC again, which my original Oncol was trying to get me to do. I said that I will def. NOT have Paclitaxel or any taxons due to the side effects of peripheral neuropathy (I still have residual nerve damage from my Guillain Barre Syndrome aka AIDP which is a neuropathy (Acute Inflammatory Demyelination Polyradicular neuropathy) and is an auto immune disorder of the myelin sheaths in nerve endings. Therefore I am not going to take the chance even tho my orig. Onco said yesterday "Not everyone gets the side effects". No, but my weird body surely will!
2nd opinion Oncol. Said she would mix some chemo drugs that do not belong to the A,C or T classes if I want to go ahead at a later stage. Has anyone had any experience with this for adjuvant treatment?
