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Anne_Maree's avatar
Anne_Maree
Member
13 years ago

Toxicity of Everolomis

Well only 11 days after commencing Everolomis I had to cease until side effects subside. Body Rash and grade 3 ( unable to eat and barely drink ) mouth ulcers. I thought after ceasing the medication I would start to improve however it continued to worsen. My platlets and white count dropped low and haemoglobem on the way down too. This is preventing mouth ulcers recovering. I have whole mouth ache now and have to constantly apply Xylocaine jelly to numb mouth. It only lasts about 20-30 minutes. 

Have also experienced migrane and diarrhoea so far.

After having such a period of wellness my body got a shock experiencing  what treatment does to your life.

I havent been able to eat for 3 days and it is getting distressing when feel hungry. Tonight I cried trying to eat. My body also is feeling under the weather with the low platelets and white cells.

Just waiting now for white cells to pick up so mouth ulcers go away.Yay..

 

side-effects

1 Reply

  • MandaMoo's avatar
    MandaMoo
    Member
    13 years ago
    Oh no! I have been there with the ulcers and white cels - I ended up in hospital. I had neupogen in the end to bring up white cells and ulcers healed very quickly. I reduced dose to one tablet a day and also found accupuncture and TCM helped manage my mouth and blood counts. I'm so sorry to hear this has been so rough for you - shows how variable we all are. Hope you mend quickly. A xx