Forum Discussion

Monicasfootstep's avatar
9 years ago

Thrombophlebitis, swelling and fever

hello
I have finished three EC cycles (day 15) fine for first week, but now i have been in hospital for 8 full days, have huge red swelling of the lower arm, high fever every couple of days, tried three IV antibiotics, had two ultrasounds (no pocket of pus anywhere just oedema fluids), and now permanent vein damage. Thrombophlebitis is the diagnosis with surrounding cellulitis but they finally stopped the antibiotics after 1 week as the swab actually showed no infection and perhaps as Dr oncologist said I was getting drug fever (already allergic to penicillin), haven't had fever since they stopped, daily blood thinning injection, cannot straighten my arm at all, it's bent.  Oncologist asked surgeon who wants to open it up and have a look, I don't think so, doesn't seem to be treatment elsewhere?? Oncologist at a loss what to do with me, shakes her head. I have now read online I now think this is rare side effect of EC?  Yes there was a failed cannula IV attempt for chemo post cycle 1 in this spot which is what we have focused on, mistake I now think.
I think it will take weeks - months before it heals? Anyone else with similar experience? I read about a cream on the U.K. Site. Help want to go home but scared too. 
Love to you all Monica

11 Replies