Forum Discussion
arpie
3 years agoMember
@Sue_w - so sorry that you are having those extreme side effects - it is not only physically debilitating, it is totally depressing too. No quality of life :( I was like that 4.5 years ago - started on Letrozole (6 weeks) then Exemestane (6 months) but now been happily on Anastrozole for the last 4 years ..... It still isn't 'perfect' - but way better than my experience with the first 2.
Everyone reacts differently to all of the AIs - some just sail thru with no real side effects whilst many of us cop varying degrees of it, some, to the extreme ..... The idea of a smaller dose over (possibly) a longer period of time makes complete sense to me - as some is always better than none (and they reckon over 30% stop taking the AIs completely within 2 years of starting, due to side effects.) https://ascopubs.org/doi/10.1200/jco.2011.38.0261
Keep us in the loop on your Onc's comments, for sure.
take care
Everyone reacts differently to all of the AIs - some just sail thru with no real side effects whilst many of us cop varying degrees of it, some, to the extreme ..... The idea of a smaller dose over (possibly) a longer period of time makes complete sense to me - as some is always better than none (and they reckon over 30% stop taking the AIs completely within 2 years of starting, due to side effects.) https://ascopubs.org/doi/10.1200/jco.2011.38.0261
Keep us in the loop on your Onc's comments, for sure.
take care