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jintie's avatar
jintie
Member
5 years ago

Spams/cramps?

Hi. I’m in my early 40s.  I completed active treatment in April 2019 with chemotherapy, radiotherapy, bilateral mastectomy with DIEP reconstruction and axillary clearance.  Ultrasounds, to date are clear.

Over the last 3ish months, I’ve been experiencing episodes where I would have spasming/cramping symptoms under my left armpit which extends into the pec (breast area).  Sometimes it would happen when I am leaning on my left arm whilst reaching for something, for example - I dropped something and it rolled under a low table, and I then have to get on the floor, lean onto my left arm whilst reaching out with my right ... then bam... spasm.

Another incident would be where I have had a massive spasming episode under my left arm and around the pec area.  I had just been holding a book in my left hand.  Set it right off and lasted for about 30 seconds.

Is this normal behaviour after BC treatment?

side-effects
treatment
  • Beryl_C_'s avatar
    Beryl_C_
    Member
    5 years ago
    Suggest you ask your GP for a referral to a Physio or try the Breast Care Centre at your treatment hospital (may not exist if you are rural). FSH in Perth has a physio in their BC Centre. You could try discussing this with a McGrath nurse.
  • Afraser's avatar
    Afraser
    Member
    5 years ago
    It may possibly be scar tissue tightening - it’s surprising how long that can continue, particularly with an axillary clearance. But best to get it checked out with a breast care nurse or physio. If it is, stretching exercises can help. Best wishes. 
  • StarGirl's avatar
    StarGirl
    Member
    5 years ago
    Hi @jintie, I actually read your post twice to make sure I hadn’t written it myself. I have the exact same issue but it’s every muscle, not just post-mastectomy relevant bits. It happens in my back, my legs, my toes even. It’s random, often triggered by a position or something simple (e.g., every time I bend to do my shoes I spasm right across my ribs and around to my back). It’s momentary, not like a true cramp, but it’s enough to stop me in my tracks. I have tried B12, magnesium, etc., but nothing really helps. Let me know if you find a solution! All the best X
  • jintie's avatar
    jintie
    Member
    5 years ago
    Yes - I have cramping in my upper back, under/around the shoulder blades which occurs even when lying down.  Annoying.
  • Kash's avatar
    Kash
    Member
    5 years ago
    Yes, me too. I'm 5 yrs since op. Still have issues with cramp/spasms. I do see a physio which helps.
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