Forum Discussion
Deanne
9 years agoMember
Gee Paula, you really have so many things to consider. All those side effects you mention are hard enough to deal with when you are completely mobile but it must be so hard for you with your restrictions.
For the concentration and forgetfulness I am trying the Elevate app recommended by another lady on here. It is helping a little!
I really don't know what I would do in your situation. Quality of life is so important. Maybe you could try Tamoxifen? I guess you just have to weigh everything up and make a decision based on the best info your doctors can give you. You have certainly given the AI's a really good try but those side effects sound like they would be very difficult to live with on a daily basis. I really feel so sorry that you have all this going on. It is so unfair that you have such severe side effects.
In general the types of things most of us find can help are just not possible for you. Have you access to hydro therapy as maybe this might be helpful? Maybe someone else on here will have something helpful to suggest? Sending you a big but gentle hug. xxx
For the concentration and forgetfulness I am trying the Elevate app recommended by another lady on here. It is helping a little!
I really don't know what I would do in your situation. Quality of life is so important. Maybe you could try Tamoxifen? I guess you just have to weigh everything up and make a decision based on the best info your doctors can give you. You have certainly given the AI's a really good try but those side effects sound like they would be very difficult to live with on a daily basis. I really feel so sorry that you have all this going on. It is so unfair that you have such severe side effects.
In general the types of things most of us find can help are just not possible for you. Have you access to hydro therapy as maybe this might be helpful? Maybe someone else on here will have something helpful to suggest? Sending you a big but gentle hug. xxx