I had my first Paclitaxel treatment yesterday. I asked my oncologist about ice therapy and he said he is getting a lot of questions about it and hasn't had a patient do it. I told him I was going to try and he said he will be interested to know how I go with it for the 12 sessions I am meant to have.
I was given some socks and I had ice packs in the top and the bottom of the socks and I double gloved my hands in ice jugs for the whole time and so far so good. I have attached a photo to show you. The nurse was lovely and got me the jugs of ice. Sending hugs xxx
","board":{"__ref":"Forum:board:side-effects"},"conversation":{"__ref":"Conversation:conversation:177234"},"author":{"__typename":"User","login":"Locksley"},"postTime":"2020-08-28T01:54:38.000-07:00","kudosSumWeight":5}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXwy","node":{"__typename":"ForumReplyMessage","uid":177242,"body":"Hi Locksley you look very well set up. I did ask my Oncologist about the ice treatment she said they are experimenting with the treatment at the moment. Unfortunately after only 4 treatments they decided to stop my treatment. I had trouble with my feet and hands. I finished three weeks ago and still have the skin on my feet peeling and nerve damage in my shins and feet. I still had 8 treatments to go. I have a follow up review with my Doctor on Tuesday and then on to Radiotherapy for 5 or 6 weeks. Hope all goes well for you. Take care","board":{"__ref":"Forum:board:side-effects"},"conversation":{"__ref":"Conversation:conversation:177234"},"author":{"__typename":"User","login":"Ween"},"postTime":"2020-08-28T02:46:49.000-07:00","kudosSumWeight":2}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXwz","node":{"__typename":"ForumReplyMessage","uid":177257,"body":"Hi Locksley, I can answer this one. I've just finished my first 5 sessions. You will see the frame that they use on your planning session for R/T You are on your back, but elevated slightly. Your arms are both above your head, well supported in a frame with padding. Your arms are not straight but gently curved. From the time you start to lay down, it would be 15 min. All of that time you need to stay still. The first 5 min the staff are with you getting you into your precise position. A few milimetres up, down and sideways etc. If you are able to put your arms above your head with fingers touching, perhaps while on a recliner chair. You would be ok. If that is really uncomfortable or difficult for you, perhaps a physiotherapist could assist with some stretches. Definitely discuss this with your Radiation Oncologist at your planning session. This seems to be 3-4 weeks prior to starting. That is when I got my 3 tiny tattoos, and was put into the frame for planning. I had a couple of consults with Radiotherapy a month or 2 prior. These were only phone consults, due to COVID. But you could also mention your concerns then too. Good luck.","board":{"__ref":"Forum:board:side-effects"},"conversation":{"__ref":"Conversation:conversation:177234"},"author":{"__typename":"User","login":"Abbydog"},"postTime":"2020-09-04T21:57:34.000-07:00","kudosSumWeight":2}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw0","node":{"__typename":"ForumReplyMessage","uid":177239,"body":"Hi @PV123, Please do a general search on this site for peripheral neuropathy. Several women have described, with pix, their DIY solutions instead of buying via the US. Although I did ice therapy from the beginning, I understand that it can still be effective even if start after chemo has started. xx ","board":{"__ref":"Forum:board:side-effects"},"conversation":{"__ref":"Conversation:conversation:177234"},"author":{"__typename":"User","login":"Gavroche"},"postTime":"2020-08-16T21:16:01.000-07:00","kudosSumWeight":1}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw1","node":{"__typename":"ForumReplyMessage","uid":177241,"body":"Good stuff @Locksley, good on you for trying. It will hopefully give you the results you want. Power on 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The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor.
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They hit along my collar bone and under my arm. I had another practice this morning I was able to keep it in the high position for 15 minutes. So I’m figuring I’ll keep practicing until the 16th and hopefully it will loosen up more. Please keep me updated on your ice treatment. You looked nice and comfy in your picture. Take care Ween","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"213","kudosSumWeight":0,"repliesCount":0,"postTime":"2020-09-04T22:45:22.000-07:00","lastPublishTime":"2020-09-04T22:45:22.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:side-effects/message:177234/message:177258","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"436","rawBody":"Hi Locksley my session will be for half an hour as I also had lymph nodes removed. They hit along my collar bone and under my arm. I had another practice this morning I was able to keep it in the high position for 15 minutes. So I’m figuring I’ll keep practicing until the 16th and hopefully it will loosen up more. Please keep me updated on your ice treatment. You looked nice and comfy in your picture. Take care Ween","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:177258_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"User:user:22671":{"__typename":"User","id":"user:22671","uid":22671,"login":"Abbydog","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2020-05-05T05:09:08.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/m_assets/avatars/default/avatar-4.svg?time=0"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:22671"},"ModerationData:moderation_data:177257":{"__typename":"ModerationData","id":"moderation_data:177257","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:177257":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22671"},"id":"message:177257","revisionNum":1,"uid":177257,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"parent":{"__ref":"ForumTopicMessage:message:177234"},"conversation":{"__ref":"Conversation:conversation:177234"},"subject":"Re: Paclitaxel","moderationData":{"__ref":"ModerationData:moderation_data:177257"},"body":"Hi Locksley, I can answer this one. I've just finished my first 5 sessions. You will see the frame that they use on your planning session for R/T You are on your back, but elevated slightly. Your arms are both above your head, well supported in a frame with padding. Your arms are not straight but gently curved. From the time you start to lay down, it would be 15 min. All of that time you need to stay still. The first 5 min the staff are with you getting you into your precise position. A few milimetres up, down and sideways etc. If you are able to put your arms above your head with fingers touching, perhaps while on a recliner chair. You would be ok. If that is really uncomfortable or difficult for you, perhaps a physiotherapist could assist with some stretches. Definitely discuss this with your Radiation Oncologist at your planning session. This seems to be 3-4 weeks prior to starting. That is when I got my 3 tiny tattoos, and was put into the frame for planning. I had a couple of consults with Radiotherapy a month or 2 prior. These were only phone consults, due to COVID. But you could also mention your concerns then too. Good luck.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":2,"repliesCount":0,"postTime":"2020-09-04T21:57:34.000-07:00","lastPublishTime":"2020-09-04T21:57:34.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:side-effects/message:177234/message:177257","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"1230","rawBody":"Hi Locksley, I can answer this one. I've just finished my first 5 sessions. You will see the frame that they use on your planning session for R/T You are on your back, but elevated slightly. Your arms are both above your head, well supported in a frame with padding. Your arms are not straight but gently curved. From the time you start to lay down, it would be 15 min. All of that time you need to stay still. The first 5 min the staff are with you getting you into your precise position. A few milimetres up, down and sideways etc. If you are able to put your arms above your head with fingers touching, perhaps while on a recliner chair. You would be ok. If that is really uncomfortable or difficult for you, perhaps a physiotherapist could assist with some stretches. Definitely discuss this with your Radiation Oncologist at your planning session. This seems to be 3-4 weeks prior to starting. That is when I got my 3 tiny tattoos, and was put into the frame for planning. I had a couple of consults with Radiotherapy a month or 2 prior. These were only phone consults, due to COVID. But you could also mention your concerns then too. Good luck.","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:177257_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"User:user:22650":{"__typename":"User","id":"user:22650","uid":22650,"login":"Locksley","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2020-05-04T16:48:07.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/images/dS0yMjY1MC1KbTVPVms?image-coordinates=0%2C0%2C160%2C160"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:22650"},"ModerationData:moderation_data:177256":{"__typename":"ModerationData","id":"moderation_data:177256","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:177256":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22650"},"id":"message:177256","revisionNum":1,"uid":177256,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"parent":{"__ref":"ForumTopicMessage:message:177234"},"conversation":{"__ref":"Conversation:conversation:177234"},"subject":"Re: Paclitaxel","moderationData":{"__ref":"ModerationData:moderation_data:177256"},"body":"Hi Ween, How long do you need to keep your arm up for the radiation. I had a frozen shoulder years ago and don't have a lot of strength in my shoulder now. I must do my exercises a bit more regular than I am doing! All seemed to go well for my 2nd session. Again had hands in ice jugs and feet in socks with ice packs - seem OK at this stage so that makes me happy. Sending hugs xxx ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"223","kudosSumWeight":0,"repliesCount":0,"postTime":"2020-09-04T20:24:05.000-07:00","lastPublishTime":"2020-09-04T20:24:05.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:side-effects/message:177234/message:177256","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"453","rawBody":"Hi Ween, How long do you need to keep your arm up for the radiation. I had a frozen shoulder years ago and don't have a lot of strength in my shoulder now. I must do my exercises a bit more regular than I am doing! All seemed to go well for my 2nd session. Again had hands in ice jugs and feet in socks with ice packs - seem OK at this stage so that makes me happy. Sending hugs xxx ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:177256_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:177255":{"__typename":"ModerationData","id":"moderation_data:177255","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:177255":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22766"},"id":"message:177255","revisionNum":1,"uid":177255,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"parent":{"__ref":"ForumTopicMessage:message:177234"},"conversation":{"__ref":"Conversation:conversation:177234"},"subject":"Re: Paclitaxel","moderationData":{"__ref":"ModerationData:moderation_data:177255"},"body":"Hi Locksley glad all is okay at your second session. My oncologist stopped me after the fourth dose. I was having major problems with my feet and legs also my finger nails. I did ask about an alternative, there was one that is extremely strong and she thought I’d be too old to take it. So I had a review last Tuesday and she hopes my legs will improve. Now I’m on to Radiotherapy I had my planning day yesterday. It is going to be a challenge as I had shoulder reconstruction about 13 years ago and my arm is the same side as my Breastcancer and where the lymph nodes were taken out. Not sure how I’m going to go at keeping really still as the nerves in the shoulder start shaking after it has been held up for a long time. I don’t start until the 16th so I’m trying to stretch it twice a day and my GP has given me some tablets. Hopefully I’ll be down pat by the time I start.
Please keep me posted on how you’re going, fingers crossed you have no side effects.
","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2020-09-04T06:24:27.000-07:00","lastPublishTime":"2020-09-04T06:24:27.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:side-effects/message:177234/message:177255","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"990","rawBody":"Hi Locksley glad all is okay at your second session. My oncologist stopped me after the fourth dose. I was having major problems with my feet and legs also my finger nails. I did ask about an alternative, there was one that is extremely strong and she thought I’d be too old to take it. So I had a review last Tuesday and she hopes my legs will improve. Now I’m on to Radiotherapy I had my planning day yesterday. It is going to be a challenge as I had shoulder reconstruction about 13 years ago and my arm is the same side as my Breastcancer and where the lymph nodes were taken out. Not sure how I’m going to go at keeping really still as the nerves in the shoulder start shaking after it has been held up for a long time. I don’t start until the 16th so I’m trying to stretch it twice a day and my GP has given me some tablets. Hopefully I’ll be down pat by the time I start.
Please keep me posted on how you’re going, fingers crossed you have no side effects.
","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:177255_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:177254":{"__typename":"ModerationData","id":"moderation_data:177254","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:177254":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22650"},"id":"message:177254","revisionNum":1,"uid":177254,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"parent":{"__ref":"ForumTopicMessage:message:177234"},"conversation":{"__ref":"Conversation:conversation:177234"},"subject":"Re: Paclitaxel","moderationData":{"__ref":"ModerationData:moderation_data:177254"},"body":"Hi @ween, how did you go with your treatment. Did they stop it or suggest something else. All went OK for my 2nd session except they were very late starting me. So that just pushed the day out longer by the time I then had the treatment, travelled home. Ended up with take away roast chook and chippies for dinner. ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"228","kudosSumWeight":0,"repliesCount":0,"postTime":"2020-09-03T18:03:06.000-07:00","lastPublishTime":"2020-09-03T18:03:06.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:side-effects/message:177234/message:177254","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"363","rawBody":"Hi @ween, how did you go with your treatment. Did they stop it or suggest something else. All went OK for my 2nd session except they were very late starting me. So that just pushed the day out longer by the time I then had the treatment, travelled home. Ended up with take away roast chook and chippies for dinner. ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:177254_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:177253":{"__typename":"ModerationData","id":"moderation_data:177253","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:177253":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22650"},"id":"message:177253","revisionNum":1,"uid":177253,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"parent":{"__ref":"ForumTopicMessage:message:177234"},"conversation":{"__ref":"Conversation:conversation:177234"},"subject":"Re: Paclitaxel","moderationData":{"__ref":"ModerationData:moderation_data:177253"},"body":"
Hi @Manan
I have noticed some pimples happening on my chin. I wasn't sure if this is related to wear a mask so often now. Breathing in and out all over myself. I am still getting some mouth ulers too. Good luck with your treatment. Sending hugs xxx
I have noticed some pimples happening on my chin. I wasn't sure if this is related to wear a mask so often now. Breathing in and out all over myself. I am still getting some mouth ulers too. Good luck with your treatment. Sending hugs xxx
","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:177253_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"User:user:22219":{"__typename":"User","id":"user:22219","uid":22219,"login":"PV123","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2019-09-29T20:53:19.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/m_assets/avatars/default/avatar-10.svg?time=0"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:22219"},"ModerationData:moderation_data:177252":{"__typename":"ModerationData","id":"moderation_data:177252","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:177252":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22219"},"id":"message:177252","revisionNum":1,"uid":177252,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"parent":{"__ref":"ForumTopicMessage:message:177234"},"conversation":{"__ref":"Conversation:conversation:177234"},"subject":"Re: Paclitaxel","moderationData":{"__ref":"ModerationData:moderation_data:177252"},"body":"Hi @Manana i also had Trastuzumab and Paclitaxel. I did not have the symptoms you have described but I had mouth ulcers, nail issues, lot of stomach issues as well. I initially had a lumpectomy and then decided to do bilateral mastectomies. You can start a new post by clicking on “New discussions” on the top right. The best person to ask about side effects would be the chemo nurse, have you been given contact numbers for the oncologist and the nurse. Good luck with your treatment.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"213","kudosSumWeight":1,"repliesCount":0,"postTime":"2020-09-03T17:46:41.000-07:00","lastPublishTime":"2020-09-03T17:46:41.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:side-effects/message:177234/message:177252","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"521","rawBody":"Hi @Manana i also had Trastuzumab and Paclitaxel. I did not have the symptoms you have described but I had mouth ulcers, nail issues, lot of stomach issues as well. I initially had a lumpectomy and then decided to do bilateral mastectomies. You can start a new post by clicking on “New discussions” on the top right. The best person to ask about side effects would be the chemo nurse, have you been given contact numbers for the oncologist and the nurse. Good luck with your treatment.","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:177252_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"User:user:22842":{"__typename":"User","id":"user:22842","uid":22842,"login":"Manana","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2020-08-17T01:41:30.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/m_assets/avatars/default/avatar-10.svg?time=0"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:22842"},"ModerationData:moderation_data:177251":{"__typename":"ModerationData","id":"moderation_data:177251","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:177251":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22842"},"id":"message:177251","revisionNum":1,"uid":177251,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"parent":{"__ref":"ForumTopicMessage:message:177234"},"conversation":{"__ref":"Conversation:conversation:177234"},"subject":"Re: Paclitaxel","moderationData":{"__ref":"ModerationData:moderation_data:177251"},"body":" Hello, im new to the group and currently doing chemo with Paclitaxel , Pertuzumab and Trastuzumab. Done 7 weeks and still 5 to go. Got such a bad side effect on my skin(face). Plenty pimples, all face red , swollen/puffy eyes. All these been treated by strong cortisone cream and claratyne. Nothing helps much ...after day of treatment its awful and then slowly getting better but never goes away. Is anybody had those side effects? Any tips how to manage? Thank you in advance. Also would like to ask where should i post my post to find out how to make decision about surgery options? thank you again.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"218","kudosSumWeight":0,"repliesCount":0,"postTime":"2020-09-02T23:59:10.000-07:00","lastPublishTime":"2020-09-02T23:59:10.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:side-effects/message:177234/message:177251","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"665","rawBody":" Hello, im new to the group and currently doing chemo with Paclitaxel , Pertuzumab and Trastuzumab. Done 7 weeks and still 5 to go. Got such a bad side effect on my skin(face). Plenty pimples, all face red , swollen/puffy eyes. All these been treated by strong cortisone cream and claratyne. Nothing helps much ...after day of treatment its awful and then slowly getting better but never goes away. Is anybody had those side effects? Any tips how to manage? Thank you in advance. Also would like to ask where should i post my post to find out how to make decision about surgery options? thank you again.","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:177251_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"User:user:21843":{"__typename":"User","id":"user:21843","uid":21843,"login":"shs14","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2019-04-10T17:13:53.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/m_assets/avatars/default/avatar-1.svg?time=0"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:21843"},"ModerationData:moderation_data:177250":{"__typename":"ModerationData","id":"moderation_data:177250","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:177250":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:21843"},"id":"message:177250","revisionNum":1,"uid":177250,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"parent":{"__ref":"ForumTopicMessage:message:177234"},"conversation":{"__ref":"Conversation:conversation:177234"},"subject":"Re: Paclitaxel","moderationData":{"__ref":"ModerationData:moderation_data:177250"},"body":"@Locksley So good to see you with your ice set up. I'm so pleased to hear that more and more people are using cold therapy. I am certain it made a difference for me as the one week my hands warmed up I immediately got pain and numbness. There are a few studies that show it works too, I found them with google but there are links in my other post about ice therapy. I actually found all my nurses supportive and all my doctors. Even though I was the only one at the start doing this and we turned up with our esky on wheels every week :D They were really interested and happy to help me follow my plan. It helped so much that my husband was on board too, like yours. Good luck with it xx ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":1,"repliesCount":0,"postTime":"2020-08-30T20:02:14.000-07:00","lastPublishTime":"2020-08-30T20:02:14.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:side-effects/message:177234/message:177250","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"717","rawBody":"@Locksley So good to see you with your ice set up. I'm so pleased to hear that more and more people are using cold therapy. I am certain it made a difference for me as the one week my hands warmed up I immediately got pain and numbness. There are a few studies that show it works too, I found them with google but there are links in my other post about ice therapy. I actually found all my nurses supportive and all my doctors. Even though I was the only one at the start doing this and we turned up with our esky on wheels every week :D They were really interested and happy to help me follow my plan. It helped so much that my husband was on board too, like yours. 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