Newbie to the group
Hi all, I must admit I do find this site a little confusing. I seem to be hitting a few brick walls from time to time. However, I willl persevere.
I have mets to my spine (many of them), sternum, ribs. Recently completed rads to spine and am on Xgeva and Arimidex. I was pain free not long after the RT but it does seem to be coming back in my spine which is concerning me a little. Not bad enough to take meds but enough for me to start to worry. Does anyone know how many rads you can have to the same spots?
I have also been getting some terrible side effects from the Exgeva, a few months in. I have neuropathy in my feet which is quite painful, constant headaches, sore legs, aching teeth . My last TM's TM53 were 41. I am hoping these new pains are not pointing to these markers increasing.
I see my onc in a week so hopefully will get some answers then.
I am 63, married with three children and one grandchild and live in Gippsland, Vic but will be moving back to Melb. soon hopefully.