Forum Discussion
NEUROPATHY
Just wanting some advice. Is anyone able to tell me their experience during Taxole treatment and if they have experienced neuropathy and if so did it improve after treatment was ceased.
I did have neuropathy and yes it did improve after treatment stopped. The effects are very variable so one person's experience may not help a great deal.
Most people experience neuropathy at a nuisance level - difficulty with buttons, stumbling sometimes. Some may get it more seriously. My hands weren't too bad and I could manage everything, but my feet got much worse, painful and problematic. My fingers still have a tiny rim of reduced feeling (it's now four years) but hardly noticeable at all. I think my feet will be permanently affected - no pain (that stopped pretty quickly after treatment) but ranges from almost normal to the "wearing two pairs of socks" feeling to hobbit feet - over sized and furry!
Mercifully I was never a runner, which is about the only thing I can't do as my connection with the ground feels too uncertain at speed! Worth taking trouble to avoid if possible (the neuropathy not the Taxol - I didn't like it but trusted my oncologist) - oncology nurses can advise. Soaking in iced water helps some, I found Vitamin B beneficial rather late on, might have been even better if I had started earlier.
And you may have no problem at all!! Best wishes for your treatment.
Most people experience neuropathy at a nuisance level - difficulty with buttons, stumbling sometimes. Some may get it more seriously. My hands weren't too bad and I could manage everything, but my feet got much worse, painful and problematic. My fingers still have a tiny rim of reduced feeling (it's now four years) but hardly noticeable at all. I think my feet will be permanently affected - no pain (that stopped pretty quickly after treatment) but ranges from almost normal to the "wearing two pairs of socks" feeling to hobbit feet - over sized and furry!
Mercifully I was never a runner, which is about the only thing I can't do as my connection with the ground feels too uncertain at speed! Worth taking trouble to avoid if possible (the neuropathy not the Taxol - I didn't like it but trusted my oncologist) - oncology nurses can advise. Soaking in iced water helps some, I found Vitamin B beneficial rather late on, might have been even better if I had started earlier.
And you may have no problem at all!! Best wishes for your treatment.