Neuropathy in feet - any advice? TNBC
Hi everyone I've TNBC and am 6 treatments down with the first Carbo/Taxel/immunotherapy regime. For part of my infusions, they put cold gloves on my hands to reduce the risk of neuropathy there, b...
Forum Discussion
Hi @KipPerth
I'm sorry to hear that you're having a tough time of it with your treatment. It is a hard slog isn't it!!
I've never heard of ALA before and am going to look it up. Are you able to purchase it over the counter or does it need to be prescribed? Is your oncologist aware of the use of it and approves? I just know mine wants to make sure anything I take doesn't counteract the chemo drugs. I only now have slight neuropathy in my toes and do exercises as well to try to manage it.
Thankfully I am pass the IV chemo stage of my treatment - following the double mastectomy I'm on an oral chemo and continued immunotherapy. (Are you on immunotherapy treatment as well?)
In terms of your progression to the Red Devil, I can understand your concerns as it was far more brutal on me than before. However, I think my fear of recurrence with my Triple Negative type breast cancer spurred me on to throw as much at the cancer as possible. But you'll obviously get the advice from your medical team and make what decision makes you feel the most comfortable. It is certainly a battle we are going through. I wish you warrior vibes and all the best. Regards Kathy
I'm sorry to hear that you're having a tough time of it with your treatment. It is a hard slog isn't it!!
I've never heard of ALA before and am going to look it up. Are you able to purchase it over the counter or does it need to be prescribed? Is your oncologist aware of the use of it and approves? I just know mine wants to make sure anything I take doesn't counteract the chemo drugs. I only now have slight neuropathy in my toes and do exercises as well to try to manage it.
Thankfully I am pass the IV chemo stage of my treatment - following the double mastectomy I'm on an oral chemo and continued immunotherapy. (Are you on immunotherapy treatment as well?)
In terms of your progression to the Red Devil, I can understand your concerns as it was far more brutal on me than before. However, I think my fear of recurrence with my Triple Negative type breast cancer spurred me on to throw as much at the cancer as possible. But you'll obviously get the advice from your medical team and make what decision makes you feel the most comfortable. It is certainly a battle we are going through. I wish you warrior vibes and all the best. Regards Kathy