Are there others on here that have had the Neulasta injection? I'm finding the bone pain from this is worse than the chemo. How long does the pain last? I had the injection on Friday. Saturday night was the worst pain but now I feel like I find a new bone every hour. Even across my chest every now and then. I'm also getting headaches.

Hi Vickiddo. I have had the Neulasta injection the day after my chemo treatments. Have had 5 so far and I haven't had any effects from it at all. I have been on EC treatment and I think I have been lucky so far with no major problems. Good luck

Vickiddo said: Are there others on here that have had the Neulasta injection? I'm finding the bone pain from this is worse than the chemo. How long does the pain last? I had the injection on Friday. Saturday night was the worst pain but now I feel like I find a new bone every hour. Even across my chest every now and then. I'm also getting headaches. Hi Vickiddo,I don't take Neulasta but take lonquex (Lipegfilgrastim). From what I have read they both stimulate the immune system to make new neutrophils and with similar side effects. I get extreme bone and muscle pain, especially lower back, chest on day 6 post chemo. Pain lasted for about five hours and only had paracetamol to take. As usual, this happened about 5 pm when chemo unit closed so was thinking of trip to emergency when pain started to subside. I wasn't expecting this side effect. Also headache. The problem is that side effects to chemo can also be bone pain etc. Oncologist prescribed Endone which I took the second time as soon as I felt the pain start and is effective. Tell your oncologist or the chemo nurses. I start cycle 4 on Friday and more worried about cannula insertion as last one was painful and left vein hard, raised and still painful. I don't have very many good veins, so not sure what they will do come Friday. Best of luckSue P

Hi there Vickiddo. I finished chemo in October 2016. Had the neulasta and the shitty bone pain. It would last a day or two tops but I bought a spa bath mat for my bath and my daughter works at the body shop and she gave me some Egyptian milk and honey bath milk. I would use that in the bath and I felt heaps better afterwards. I know it's hot at the moment but it's worth a try it was totally heavenly and I didn't have much luck with anything prior to this. I used it too before I bought the spa bath mat and it was still really helpful for me. I'd be happy to get you some and post it to you if you like ?? Margie

I remember that bone and headache pain. It was like your forehead bones were bashed or something lol. Best treatment is walking. Take as many Panadol as you like and if that's not touching it take Targin and try to just muddle through it as best you can. My worst day was always the 5th day after chemo and 4th after the injection.

Yes Brenda5! That forehead! Like having sinus but you don't have sinus! I'm really missing my walking. I have to stay out of the sun as my skin is flaring up. Might have to get the hubby out walking with me when the sun goes down.

Neulasta Pain | BCNA Online Network

18 Replies

Vickiddo
Member
9 years ago
The Claratyne seems to have worked for me. Had my last one on Thursday :) I couldn't take any pain killers as they make me sick so anything was worth a try. Pain has still been there but very very mild compared to my first one.
Sparkles
Member
9 years ago
Hi all - I had my first Neulasta on Saturday after chemo on Friday. I will be glad to try the Claratyne - been okay until today but ouch! Walking and moving around has helped too. Thanks :)
Nadi
Member
9 years ago
Hi Vicki I had terrible experience with bone pain from neulasta. At one stage it was so bad in my sternum that I thought I was having a heart attack! They gave me endone. It didn't work. The only thing that worked for me was naproxen which I got over the chemist as period pain tablets. It's NSAID and some oncologists don't like their patients taking them but the pain was excruciating so my onc relented. after taking them I was pain free in a hour.
Unicornkisses
Member
9 years ago
Yes, thank you Soldier Crab. It was the use of Clarytyne I remembered seeing.
SoldierCrab
Member
9 years ago
@Unicornkisses is this it ?
Vickiddo
Member
9 years ago
Thank you! I used Claratyne for the last one and didn't get any pain at all. I have two to go! Will do it again next week.
SusanV36
Member
9 years ago
Hi, yes I am on TCH with neulasta and have taken claratin also- it works, an hour before you give yourself the shot, then the next few days after. :)
socoda
Member
9 years ago
Hi Vickkido, I like Zoffiel also have read about Claratin and it was on one of the UK cancer sites and they recommend it with the neulasta injections. Can't hurt to give it a go (after check on with gp). All the best . Xx Cath
Zoffiel
Member
9 years ago
Hi, after 5 rounds of chemo with Neulasta I did some research and found articles recommending Claratin. It works. I used to be lying on the floor crying for days, now I take a pill a day for 10 days starting on chemo day and apart from manageable discomfort on day 4 I'm OK. Can't believe something so simple could make such a difference. Ask your onc if they are ok with it. Not a great deal of research has been done on this--its a$1 per day solution so that doesn't surprise me much.
onemargie
Member
9 years ago
Hi there again vickiddo I've sent you a personal message about the mat