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Flaneuse's avatar
Flaneuse
Member
4 years ago

My peripheral neuropathy is back with a vengeance

Hello folks, I've been away a long time, trying to get on with life and deal with other health issues.

I thought others may be interested in this issue that has arisen for me lately.

Three years yesterday since the end of chemo, it seems that my peripheral neuropathy is back. I've had a residual numbness in the front of my feet - particularly my left foot - for some time, but put that down to worsening arthritis. The toes have gradually become more misshapen. Also increasing arthritic pain in my hands. But about six months ago, I started having burning sensations on the skin of my feet - toes, instep, ankles, and some parts of my hands. My GP ordered a range of blood tests and - other than a wobble in my thyroid levels and B12 deficiency - she said there was nothing to indicate anything other than to infer that it was a return and increase of the PN. My podiatrist said the same. I'd seen my medical oncologist for my annual a couple of months ago and hadn't mentioned it to her at that time because I hadn't thought it was related to the cancer. I was blaming arthritis. Interesting. Nothing to do except keep walking. A masseuse last week did intense foot massage and did toothpick pricking around my nails. I now do that myself most nights. She also suggested epsom salts (magnesium) foot baths. On my next shopping list. 

Greetings to anyone still on here that I used to "know".
Cheers,
Fran
  • There was a discussion on this very topic recently and this was offered:

    "Vicks Vapor Rub® – Massaging one's feet with Vicks, particularly at night, soothes neuropathic pain and distress in one's feet and legs. It is also excellent for softening your toe nails and diminishing common toe nail problems. Warm/Cool Baths and Showers - Excellent de-stressors and can help with reducing pain"
  • @Afraser @Keeping_positive1 @iserbrown Thanks for your comments. I'll see how I go on the new B12 tablets. If there's improvement, OK. If not, I'll ask the GP about injections. Am certainly going to continue with massage. And try the magnesium foot baths.
    All the best to you all.
  • Dear @Flaneuse

    Good to hear from you, but sorry to hear about your PN flare up. I started taking MegaB on the advice of an oncology nurse years ago . On the basis that it’s unlikely to do any harm, I still take it. My PN was quite severe in my feet, making walking difficult at one time. I stopped having pain quite quickly but still have odd sensations in my feet - sometimes not much, sometimes quite a bit, can’t make out any pattern. Feeling as if you are walking on foam rubber sounds quite pleasant, but it doesn’t do much for your balance! I walk a lot though and feel that it helps, just push through the jangled and confused nerve endings! You may like to investigate vitamin B further with your GP. I have also found foot massage provides short term improvement - sadly not long term but if/when we get out of lockdown, I’ll be having one of those! Best wishes. 
  • I understand that a symptom of low B12 can be peripheral neuropathy.  And because you have low B12 is it suggested you have a B12 injection?  I hope it improves for you soon, best wishes and stay safe.