Forum Discussion
kezmusc
8 years agoMember
Mater Springfield. 80% success rate now with cold caps!!! And the boys are using it too!
HI everyone, i went for my 3 monthly oncology check up yesterday. As I was one of the first few people to use their new paxman scalp cooler I was keen to see how it was going for them. I had a cha...
Anonymous
8 years agoNot applicable
That’s great to hear @kezmusc. I wonder if there’s a pattern with the other 15-20% and if it is now more successsful with Adriamycin. I’m also interested in what amount of hair retained constitutes success.
I’d love a feedback system for pain, satisfaction with the cold caps etc. to keep improving the system. I heard that they are better at giving pain relief and sometimes anti-anxiety medication before the cold caps now. Mindfulness would be very useful in this context. I hope this system is expanded and offered to more people as it certainly has benefits, despite the pain and discomfort. I used this system in the very early days, almost 3 years ago now. There were teething problems then.
I’d love a feedback system for pain, satisfaction with the cold caps etc. to keep improving the system. I heard that they are better at giving pain relief and sometimes anti-anxiety medication before the cold caps now. Mindfulness would be very useful in this context. I hope this system is expanded and offered to more people as it certainly has benefits, despite the pain and discomfort. I used this system in the very early days, almost 3 years ago now. There were teething problems then.