Make your side effects known

Hi,  Thanks for clarifying that you are just trying to get some attention paid to these side effects so that some treatments will be developed for them. Maybe there are some things available now that could help. An oncology nurse said in their journal that  seems that often these solutions come from paitents experimenting and finding answers that work for them, and eventually this feeds back to the oncologists..There is a thread on the her2support.org group about side effects when down to Herceptin-only.  http://her2support.org/vbulletin/showthread.php?t=57713

One woman had some suggestions about what worked  for her joint pain. Please let us know if helps you. She says:

"Side effects from Herceptin only (after 6 TCH)? Easy, running nose and achy joints but once I started glucosamine it got alot better. It is designed for joints and bones. I was told it worked well. I checked with my oncologist before I took it and she said it was fine. It has worked wonderfully for me. I have no pain. I could barely walk in the mornings due to my joint pain and about 2 weeks into the glucosamine I was feeling better. I am also on femara which causes joint pain and feel pretty good. Everyone is different but it works for me. I also take Vit D and calcium and my bone density was excellent. Good luck. It will go well. Promise!". 

I have a friend whose hands were so crippled with arthritis he was going to have to stop work as an electronic engineer. He waxes lyrical about glucosamine, which totally reversed the problem. He said it is a natural food product rather than a bioactive drug as such, and told me to make sure to get glucosamine Sulphate, not any of the other glucosamine salts, He takes 1500 mg a day

best wishes for an effective treatment for this pain now.