Make your side effects known

I know it will not happen in my lifetime but I am hoping for something (another drug?) to counteract joints pain from herceptin not banning it. Currently joints pain is not a widely know side effects from herceptin.

This is a safe place to express my woe. My GP recommend panadol, my oncologist recommends aspirin, ibuprofen or naproxen for the pain, and none help 

The second reference is not a scientific site but the figures (facts?) given is from The New England Journal of Medicine. 2005. I also find traditional medicine can be bias by highlighting and interpretating the figure as a better outcome of successful non recurrence (increase from 12.9% to 24.6% is an increase of 50% or 52.4 is more impressive than 12.7%  both figure are factual).

Perhaps Disease-free survival (DFS) is more accurate term. BC free is less accurate because undetected cancer cells remain in the body after treatment and cause the cancer to return later (recurrence or relapse), “thus BC free or better term DFS” when there is no cancer detected five years after diagnosis.

I am already half way through my treatment, after so many side effects, not just joints pain, it all be for nothing if I stop now.

PBS is paying $50,000 for herceptin have no relation in reporting heceptin side effects to TGA because first it must be acknowledge that it existed that it may be able to treat this side effect in the future.