Forum Discussion
Lymphoedema Blues
Today is not a good day. Have just seen my lymphoedema physio who I've been visiting for the past few years and who has been helping me manage my lymphoedema pretty successfully up until now. When I w...
@Jane221 great news. Although it's a pain, keep up the garment wearing and massage especially in summer. I am going to have to wear mine on my big holiday later this month... However I know from experience that it is worth the inconvenience in the long run. Having said that, I am going to have a sneaky night out of my garment at my daughters Year 12 graduation dinner this week. Will massage twice as long to make up for it ;) .
Interestingly there was an international lymphedema conference in Cairns a couple of years ago that I was lucky enough to attend. In the consumer Q & A session with a top notch specialist from England I asked about the complications of wearing a garment in the tropics and he was quite at a loss how to help me. When things got really bad I would have areas on my glove, particularly in the area of the webbing between my thumb and first finger that would almost rub raw...something a lymphedema patient does not want happening. I was very lucky to have a cancer OT at the local hospital who worked tirelessly with the place in Germany where the custom made garments I wear were made and they eventually made a much better fit garment in that area. Having a good therapist who knows what they are doing is paramount as I am sure you know. I hope you continue to improve.
Paula xxxx
Interestingly there was an international lymphedema conference in Cairns a couple of years ago that I was lucky enough to attend. In the consumer Q & A session with a top notch specialist from England I asked about the complications of wearing a garment in the tropics and he was quite at a loss how to help me. When things got really bad I would have areas on my glove, particularly in the area of the webbing between my thumb and first finger that would almost rub raw...something a lymphedema patient does not want happening. I was very lucky to have a cancer OT at the local hospital who worked tirelessly with the place in Germany where the custom made garments I wear were made and they eventually made a much better fit garment in that area. Having a good therapist who knows what they are doing is paramount as I am sure you know. I hope you continue to improve.
Paula xxxx