Forum Discussion
Lymphoedema Blues
Today is not a good day. Have just seen my lymphoedema physio who I've been visiting for the past few years and who has been helping me manage my lymphoedema pretty successfully up until now. When I w...
Oh Jane,
I so can relate to your post and am right there with you. It is such a shock to have had it all under control and then it just goes pear shaped, often for no apparent reason. I had exactly the same reaction as you when I was first told mine was playing up again. I kicked and screamed and cried for a while and refused to acknowledge that I needed to go back into my long garment at work. I nearly drove myself mad with reasoning why, why, why this was happening after being in control of my lymphedema for so long. Then after all that anger and denial I did settle down, and like we often have to do with this rotten disease I reached some form acceptance and got on with the job. You will get to that point to and get into the bandaging, you just need to process and have a cry for a bit first (you're entitled to that). Then it will be head down, bum up and lets just do this bandaging and get on with things. Bandaging can be challenging, although I have heard it is not nearly as bulky as it was a few years ago so I hope that is the case. It can be very effective and quite quickly, just a bit of a pain. I bought one of those plastic things that people in plaster casts wear over their casts in the shower and it was brilliant. After a while I got used to the bandages. They will help.
Sending you the biggest cyber hug.
Paula xxxxxx
I so can relate to your post and am right there with you. It is such a shock to have had it all under control and then it just goes pear shaped, often for no apparent reason. I had exactly the same reaction as you when I was first told mine was playing up again. I kicked and screamed and cried for a while and refused to acknowledge that I needed to go back into my long garment at work. I nearly drove myself mad with reasoning why, why, why this was happening after being in control of my lymphedema for so long. Then after all that anger and denial I did settle down, and like we often have to do with this rotten disease I reached some form acceptance and got on with the job. You will get to that point to and get into the bandaging, you just need to process and have a cry for a bit first (you're entitled to that). Then it will be head down, bum up and lets just do this bandaging and get on with things. Bandaging can be challenging, although I have heard it is not nearly as bulky as it was a few years ago so I hope that is the case. It can be very effective and quite quickly, just a bit of a pain. I bought one of those plastic things that people in plaster casts wear over their casts in the shower and it was brilliant. After a while I got used to the bandages. They will help.
Sending you the biggest cyber hug.
Paula xxxxxx