Lymphoedema Action Alliance

Done! i.e. went to the site and registered.  I have found it curiously and frustratingly hard to get support with my lymphoedema problem - the gp didn't want to know (or even take a look) and it took 3 visits to the clinic by the breast care nurse before doc would write a referral to a lympho practitioner.  Specialist has since done great things with massage and referral for compression garments, but it is sad that people have to wait 7 (seven) months after referral for an assessment appointment at the city hospital.  Much more needs to be done to make necessary treatment available, and to inform doctors of the condition's relevance.