Forum Discussion
mum2jj
9 years agoMember
@Share My lymphedema therapist told me that you can develop it at anytime after treatment, but I guess by 13 years you would have thought you were not going to, so I feel your pain. I had initial diagnosis 2009 and had 7 nodes removed and went on to have lumpectomy, chemo and rads. No lymphedema and thought I was sweet. I had developed a pesky infection around my fingernail and never once thought of lymphedema. I unfortunately at around the same time (18mths after all treatment finished) had a recurrence. This time I had a mastectomy and another 6 nodes removed and more chemo. I had to fly every 3 weeks for chemo and that probably didn't help. It was about half way through that treatment that I developed my lymphedema. My problem area was my hand. I initially saw a private therapist and because at the initial stages my problem area was my wrist and I balked at a glove she only put me in a sleeve. Of course the fluid was pushed straight into my hand!!! So I then managed to get into the public system and had an amazing therapist who told me to grow up and I needed a full sleeve. I hated it and it caused all sorts of problems at work as I am a nurse. I managed to find a good two piece for at work that I could slip the hand on and off quickly. I persevered with the long garments for a couple of years but as my problem was mainly my hand I was able to swap between a long and a short (only to my elbow) garment. I would self massage in a very particular way as shown by my therapist for a good 20 mins each night. Eventually I was able to go glove free at work and only wear a short glove the rest of the time. This was great for about three years and then wammo I had a bit of a blow out just below my elbow last year. So was back into garments at work, and the long garment. I have no idea what caused it to flare up again . I am now self massaging daily for longer (had probably dropped down to 5 mins before flare up). The hard work is paying off. I feel for you with a 50cm difference. Keep up the daily massage, has someone shown you the correct way to do it? Let me know if you want a description. Sending you a huge hug.
Paula xxxx
Paula xxxx