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Donna_Message's avatar
Donna_Message
Member
11 years ago

Living on a RollerCoaster

I wish to first express my thoughts for JennyWren. Gosh cant seem to find the reply button Jenny but i am so sorry this has happened to you. Yes it is a rollercoaster the ups and downs of having cancer and what a pain it is. I find it hard to see the gain except that life is so precious from morning to dawn we see the beauty in everything and everyone - almost everyone. So please Jenny if I can do anything for you in the way of support let me know. I didnt go to our first meeting as i was at FSH having my monthly review and it was not a good result. The Tamoxifen did not work and so the cancer has spread further and deeper into those areas already present, the spine, joint of my femur, hips, etc. I am on a course of  Everolimus and Exemestane with a review in a weeks time. I am also booked into Orthopaedic for a hip replacement. What a! couldnt believe my ears. Me a hip replacement. They want to do it before the fracture starts and now that i am classed as a High Risk i had to cancel my trip to Singapore. I was a little sad but not disappointed. Remember when we all had that discussion on Travel Insurance? Well better safe then sorry hey. At present i am at home and happily so where i can manage my illness and the only beautiful thing that came out of it is that my Big Sister came over. Oh alleluia my prayers have been answered. I dont know about you but i pray everyday, have conversations with the Boss upstairs and he has answered my prayers. I am less sad and less anxious but I have been thinking about getting my WILL in place because though everything is going to my husband I know he'll drop my clothes and beloved books at the Salvation Army. Apart from that you feel that its countdown to when the inevitable happens. Side effects of these two drugs in the first view days are headaches,nausea and vomitting, then the following week, diareahoa and increased risk of infection.Low blood platelets and increased risk of bleeding. I see why they mentioned flossing. Mouth Ulcers and loss of Appetite. You know I thought losing some weight would be fantastic but i've gone from 68kgs to 59 since October last year. Theres a few other things but its always nice to share with my Cancer Buddies. If there are any other ladies using these drugs i would love to chat with you. So thats my story. Jenny opened it for me and I hope to give her a hug when I see her. Take care Jenny and to all. Donna

side-effects

1 Reply

  • jennywren's avatar
    jennywren
    Member
    11 years ago
    hi Donna, I only just read your message this evening as I have not been online since my surgery last week. I am so sorry to hear of the roller coaster ride you are currently on and sincerely hope that your latest review was positive? I am really interested as I have today started on the same drug combination everolimus and exemestane. I will also be commencing radiation once I have recovered from my surgery. Are you going to the meeting on Wednesday? I have been debating whether I feel up to it or not but am hopeful that I will get there so we may get a chance to meet up. So sorry you had to cancel your trip, these are the things we look forward to so I know how difficult that must have been for you. At least you got to see your sister though. Anyway, I am in bed and can hardly stay awake so will sign off for now, but hope to chat soon. Best wishes Jenny (real name Jean......long story!!)