I'm happy for you that something seems to be helping. It's the rock and hard place thing - who wants to live like this but you have no choice if you want to live.
Although some of my pain has returned since taking the prednisolone, so far it hasn't gone back to anywhere near what it was beforehand so I'm hoping it has settled - I think I can manage this long-term. Finally heard from the rheumatologist's rooms yesterday - appointment for 23 December, but I'm on a cancellation list. If anybody's kids are looking for a medical specialty, I'd suggest that one - long waiting list and big gap.
Good luck with the bs appointment @kmakm