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lrb_03's avatar
lrb_03
Member
9 years ago

Infected lymphoedema

Hi all. It's been a while since I've been on this site. 
A brief history. Diagnosed May 2015 with node positive invasive ductal carcinoma.  6 cycles of chemo, followed by lumpectomy & axillaary dissection in October. Re-excision 5 days later, as margins not clear. Sixweeks later, on theday I started radiotherapy I was diagnosed with arm lymphoedema and went in to my 1st compression sleeve. Nine treatments in to radiotherapy I developed mastitis, and have had lymphoedema in the breast since then. Finished radiation late January this year. Have been lucky not to have too many side effects from the leterazole. 
About 6 or 7 weeks ago, I suddenly developed a red breast again. Off to the GP thinking it was cellulitis, in spite of no temperature.  This was the following day, and my breast didn't seem quite as red looking. As I was seeing Rad Onc the following week, she said hold off on antibiotics and ask their advice.  Rad Onc said start antibiotics.  So I started keflex. 7 days later, minimal change and about to go on holidays for 3 weeks, so saw regular GP, antibiotic changed. Gp contacted me a few days later, no real change, so she discussed with my surgeon, and I changed to yet another antibiotic.  Surgeon thought it sounded like infected lymphoedema??? Anyone out there heard of this? 16 days on new med, breast still red/pink on and off, much as it's been throughout. 5 days off antibiotics, saw GP, breast not looking too bad that day. Said that infected lymphoedema can take a lot to clear. So, back on heavy duty anti bug drugs and feeling a little sick of it all. 
Anyway, after that long story, has anyone out there had anything similar? 
Thanks in advance 
Lyn

  • Lyn I hear you about finances allowing or not allowing us to access things we really need more often. 
    hugs alice xxx
  • Hi Lyn, sounds like you are doing the right thing being on antibiotics as @Afraser said, your body can find it difficult to fight any infection on its own. Here's hoping you start to see some improvement soon, it's so frustrating having to deal with this condition on top of everything else. Sending hugs, Jane xx
  • Thanks to all for your responses.  @Cosette_BCNA, thanks for reaching out to Afraser.
    @Afraser, I still have a seroma in my breast, and a smaller one in my axilla, neither connected to whatever is going on in my breast. I have a medical oncology review in about 3 weeks, so maybe he'll have some ideas, if there hasn't been any change by then. Failing answers there, I'll head back to my surgeon, who is in a different city to me (complicatingmy own life, but that was my choice)
    @Soldier  Crab, If you call around every 4-6weeks regular, I do have massage with my lymphoedema physio.  I saw her last week, and she spent most of the availble time working on my breast, but didn't have to many suggestions. I do my self massage twice a day, as she has always advised.  Unfortunately,  not in a position financially,  or time wise to do more than that.

    Cosette, on another subject, is there somewhere I can look for some guidelines or instructions on the new site? I know I had a number of notifications before the changeover,  but can't work out how to find them. Thanks again

    Lyn
  • hi Lyn, 
    do you have regular massages? or lymphatic massage it might be something that you need to help keep the lymphatics draining to get rid of the infection. Hope it clears up for you I know when I got infection in my armpit where I have lymphodema it was very painful. hugs 
  • Afraid not, except that this is how my breast cancer was first detected (clearly not the case here). I simply got a sore breast (didn't find a lump) and it looked like mastitis or an abscess. My lymphoedema is in my left arm, not my breast (I had a seroma on the breast site post surgery, which may have contributed). Any infection in a lymphoedemic part of the body may need antibiotics, as the body's own capacity to deal with even a minor infection in that part of the body is reduced - so the prescription for antibiotics makes sense, as does time for the infection to clear.

    Perhaps give it another week then seek another opinion? What does your lymphoedema therapist say?