Forum Discussion

LucyBell's avatar
LucyBell
Member
2 years ago

I'm still about - my next update -

Haven't felt like coming in here much and seems I'll need to move onbto another area perhaps....
So my Mammogram etc in january after finishing radiation in July - breast clear. 1 ticked off.

I've begun chemo for colon, omentum spread and 3 nodes......first round was shite - especially when they told me to not take any laxatives etc.....as expected I would get diarreah.....but no I had a horrific 4 days and ended up in ER needing an enema - plus colitis.....so draining and uncomfortable.....so am doing it "my way" and have just done round 2....whacked day 1 arvo but lots of energy day 2.....I go home with one attached and had that disconnect yesterday, did too much yesterday perhaps and about to go lay down.

So the plan is fortnightly chemo, til at least May - follow up with Peter Mac clinic...see if spread has stopped....reassess if operate.....thats basics...as I can't be bothered with full explainations sorry ..... but doing ok. Just got to kick it's arse outa mine !!!

Hope everyone is doing ok.

regards and best wishes.
  • @LucyBell it is full on for you at the moment, and sorry you are having such a tough time.

    No need for full explanations here.  Share what you like here.  Best wishes as you proceed with your treatment. X
  • Hello @LucyBell,  I'm so sorry you're have such a tough time, thinking of you and sending hugs xx
  • Sending you lots of love and care. Hope your weekend is going ok for you. šŸ’
  • So sorry to hear you've had a tough time of it @LucyBell xx
    I hope they can tailor the treatment to suit you more ... and definitely, take it easy after your infusions xx  Make sure you drink plenty of water, and eat when you can, whatever you like - I hope you have plenty of support at home! xx 
    Just keep an eye on your hands & feet for skin peeling - let your Onc know if that happens. 
    Is your 'take home' mix a bullet shaped tube that feeds over a few days (that you wear around your waist in a 'neoprene belt'?) Hubby had that one. 
    Do you have a Port or a Picc Line?  
    Take care & all the best - Hoping your next tests show reduced activity xx