You have been given alot of information. Hope your brains not gonna explode LOL. I was 28 when diagnosed and have been in the breast cancer world now for 2 years I have alot of knowledge, some my own experiences, some other peoples advice.
Firstly I would love to tell you about a private support group I started on Facebook for those diagnosed at a young age. When she is ready she can talk to other ppl around her age going thru something similar.
https://www.facebook.com/groups/youngpinksisters/
We are world wide and also offer local catch ups too, depending on where abouts you live. We have over 200 members and have people from every state in Australia. She could always message me directly too, if she ever wants to talk.
I think what you are doing to help your sister is amazing! Dont forget to look after you and your family too...
My first bit of advice I give is to document her 'journey' take photos, write stuff done etc. This has been a major thing that has helped me I think.I have a blog. https://www.facebook.com/groups/254999904591993/ Its great to look back and see how far I have come & how I feel Im not making progress, but I am, I can look back and see WOW Im better than I was. Or look how much my hair has grown. I know it sounds wierd coz you feel so low why would u wanna document that. But now looking back, its great.
I went public. I have had 7 surgeries, 6 chemos, 25 radiation sessions and heaps of appointments etc etc... No out of pocket expence and I get great treatment. See the same specialists/surgeons every time. However some public hospitals and some states in Australia, can be different. Im from Victoria and the difference between hospitals is amazing when talking to other patients. So it comes down to where you live? Find the right team for the job. The only thing that was out of pocket was IVF, which I was lucky enough to squize in between surgery and chemo. It was a very emotional experience, but very successful, I have 4 frozen embroys :-) Waiting for my body to be ready and finish all preventative medications in 5-10yrs. I dont regret doing it even tho it was a very rushed and emotional thing. it cost out of pocket maybe $3000. paid about $10,000 medicare covered it for me.
Talk to your team about recon - everyone is different - some choices are not suitable. I would love to speak to her about this privately. I went thru single masectomy with recon via tissue expanders (which are then replaced with implants) It is a very LONGGGGGGGGGG process, alot of surgeries, & your going to have 1 boob diff to the other forever. If she has the option to have a double mastectomy with implants thats a better option I think mentally and physically. I think for her age implants are the best option and if her DR would do a double I would strongly think about it. I can give a list of con's v's pro's on this subject. depends on alot of things, but some specialists will make u wait until after radiation to have recon. I strongly suggest talking to the surgical team ASAP
Just some things to think about to get you and your family thinking.
Like I said always here for a good old chat.
Shes very lucky to have you all...
Merylee