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Hazel_M's avatar
Hazel_M
Member
10 years ago

Hi from Hazel M

Hi everyone, hope everybody is doing as well as can be expected. It's been quite some time since I have checked in on the website. Couldn't really handle the new site very well. My last post was terribly depressing and I figured I wasn't doing anybody any good talking the way I was. It's coming up 3 years since my diagnosis and lumpectomy, and I am pleased to say I have had 3 good check-ups with nothing suspicious found. My depression and anxiety which eased somewhat after my chemo and radiation, has returned unfortunately. I am constantly trying to train my brain to overcome this. My partner, who was diagnosed with heart failure during my chemo is doing well and we have remained very strong together. I have been browsing through the posts and noticed Deanne is still offering wonderful advice:) Rowdy, glad to hear you are doing fine. Is Robyn still on the site? 

I am still on Arimidex, coming up 2 years now, I haven't had any of the severe side effects but I'm not really happy with them. I remember the oncologist saying that I would feel like an old lady to which I didn't give much thought at the time as I was in my fifties and didn't regard myself as young. Getting out of bed these days I sometime feel 80! Sex drive is non existent. I am due to see her in January and see what she can do. Of course, you have to weigh up the aches and pains against getting another breast cancer. I will probably stay on them for the 5 years, but I know they are currently thinking 10 years might be better. That's a decision for the future. The other side effect is the deterioration of bones, I am on 6 monthly injections of prolia and my last bone density test showed some slight improvement. 

I will sign off now, hopefully on my bright days, I can offer some comfort and advice to the lovely ladies on this site. 

Hazel xx

side-effects

17 Replies

  • SoldierCrab's avatar
    SoldierCrab
    Member
    10 years ago

    Hazel and Deanne,  

    Im on prolia next week will be my 3rd 6monthly jab.... I've had No side effects from it....

    Hugs Alice

  • adean's avatar
    adean
    Member
    10 years ago

    So lovely welcome back, we need us ladies who've been around forever to let the girls no how good and bad bc can be, hazel you remember how invaluable the site is. Love and big hug to you.  Adean

     

  • Deanne's avatar
    Deanne
    Member
    10 years ago

    That is so true, Hazel. Treatments are not without their down sides but at least we have these extra options. Treatments are improving all the time and I keep hoping that they will come up with even better options with less side effects. :) So helpful to share your experiences. You have helped me to think a bit more positively about these medications again. Keep in touch. xxx

     

  • Hazel_M's avatar
    Hazel_M
    Member
    10 years ago

    The site is a great place for advice & comfort. I just get a little down sometimes, fed up with what this diagnosis does to people's lives  thank you for your post, Hazel xx 

  • Hazel_M's avatar
    Hazel_M
    Member
    10 years ago

    Hi Paula, I have some bursitis as well, my job requires me to be on my feet, painful. Hope your injuries heal soon. Nice to be back, Hazel xx 

  • Hazel_M's avatar
    Hazel_M
    Member
    10 years ago

    Hello there, a GP? You clever woman, what's the deal with (twice)? When I didn't see your name last night, I was worried you had given the site a miss. Glad it isn't so, your advice has helped so many, myself included. So glad you are doing great. Missed you,  Hazel xx

  • Hazel_M's avatar
    Hazel_M
    Member
    10 years ago

    Thanks for your post; gee, Everest base camp, what a challenge! Yes, it is good to know I'm not alone in feeling like an old woman on this hormone treatment. When I read the side effects of prolia, I thought 'here we go again', more side effects to deal with. The whole BC process involves effects, chemo, radiation & pills. At least in this day & age, we have more options, I know my mother & sister didn't have the great treatment we have nowadays. Hazel xx 

  • Hazel_M's avatar
    Hazel_M
    Member
    10 years ago

    Hi Alice, I regularly see my GP & a councillor. Childhood issues are at the heart of my problems, still working through them. Thank you for your concern, Hazel xx