Will take the three nausea pills today regardless and see how I go.. 🤞🏼
Always greatful for your support 🌸 I hope you are doing well 💫
","board":{"__ref":"Forum:board:side-effects"},"conversation":{"__ref":"Conversation:conversation:205168"},"author":{"__typename":"User","login":"Fernweh"},"postTime":"2022-03-08T18:51:09.000-08:00","kudosSumWeight":2}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw0","node":{"__typename":"ForumReplyMessage","uid":205170,"body":"Thank you @Brenda5 I have bought some ginger ale and will give it a go.. I took no nausea medication yesterday but struggled to eat much.. had a crystallised ginger in mu hand for 2 hours trying to eat some, but that was also a struggle. Caved in this morning and took a nausea pill 🤞🏼","board":{"__ref":"Forum:board:side-effects"},"conversation":{"__ref":"Conversation:conversation:205168"},"author":{"__typename":"User","login":"Fernweh"},"postTime":"2022-03-08T18:34:19.000-08:00","kudosSumWeight":1}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw1","node":{"__typename":"ForumReplyMessage","uid":205176,"body":"Hi @Fernweh - I definitely had crappy days post A/C but one thing the nurses were really emphatic about with me was to take the anti nausea pills regardless of how I was feeling for the first 3 days - that I was not to wait until I ‘felt’ the nausea. They told me that once it starts, it’s hard to pull it back. I was also on steroids for the first 3 days - they tapered off so over the 3 days I took less, by day 4 after the infusion I had stopped them and I was on the up and up again. I found when I had chemo after lunch Wednesday, I was on the couch until Friday morning - Thursday was my tough day so I really needed the meds - never physically sick, just felt blah. Even if I felt ok on the Friday, I still took the pills. Hang in there, there is no denying how shitty it can be, but take the meds and if you can, rest as much as you can in the first couple of days. I also went for a very slow walk each day just to get moving and tried to drink a lot of water to flush my system. When I say slow walk, I mean super slow. You will get to know your good days and hopefully you will have plenty of them where you can do things. I just knew the Thursday the day after was couch day and then I was ok for the next 10-12 days 🌸","board":{"__ref":"Forum:board:side-effects"},"conversation":{"__ref":"Conversation:conversation:205168"},"author":{"__typename":"User","login":"Mazbeth"},"postTime":"2022-03-09T22:47:10.000-08:00","kudosSumWeight":1}}]},"cachedAsset({\"assetId\":\"Common\",\"assetType\":\"quiltWrapper\",\"lastModified\":\"1743643541275\",\"locale\":null,\"node\":null})":{"__ref":"CachedAsset:quiltWrapper:breastcanceraus.prod:Common:1743643541275"},"cachedText({\"lastModified\":\"1742938040000\",\"locale\":\"en-US\",\"namespaces\":[\"components/common/ActionFeedback\"]})":[{"__ref":"CachedAsset:text:en_US-components/common/ActionFeedback-1742938040000"}],"cachedAsset({\"assetId\":\"custom.widget.Custom_Footer-en-US\",\"assetType\":\"component\",\"lastModified\":\"1743643626383\",\"locale\":null,\"node\":null})":{"__ref":"CachedAsset:component:custom.widget.Custom_Footer-en-1743643626383"},"cachedText({\"lastModified\":\"1742938040000\",\"locale\":\"en-US\",\"namespaces\":[\"components/community/Breadcrumb\"]})":[{"__ref":"CachedAsset:text:en_US-components/community/Breadcrumb-1742938040000"}],"cachedText({\"lastModified\":\"1742938040000\",\"locale\":\"en-US\",\"namespaces\":[\"components/messages/MessageBanner\"]})":[{"__ref":"CachedAsset:text:en_US-components/messages/MessageBanner-1742938040000"}],"cachedText({\"lastModified\":\"1742938040000\",\"locale\":\"en-US\",\"namespaces\":[\"components/messages/RelatedContentWidget\"]})":[{"__ref":"CachedAsset:text:en_US-components/messages/RelatedContentWidget-1742938040000"}],"cachedText({\"lastModified\":\"1742938040000\",\"locale\":\"en-US\",\"namespaces\":[\"components/messages/MessageListForNodeByRecentActivityWidget\"]})":[{"__ref":"CachedAsset:text:en_US-components/messages/MessageListForNodeByRecentActivityWidget-1742938040000"}],"coreNodes({\"constraints\":{\"id\":{\"in\":[\"community:nkyiu94732\",\"category:newly-diagnosed\",\"category:treatment-and-surgery\",\"board:living-with-and-beyond-breast-cancer\",\"category:lifestyle-and-wellbeing\",\"board:living-with-metastatic-breast-cancer\",\"board:clinical-trials-and-research\",\"category:carers\",\"category:social-zone\",\"board:general-discussion\",\"category:groups\",\"grouphub:autismspectrumdisorderandbreastcancer\",\"grouphub:bcna-mod-squad\",\"grouphub:breast-cancer-childlessness-and-us\",\"grouphub:carers-corner\",\"grouphub:christians-diagnosed-with-breast-cancer\",\"grouphub:choosing-breast-reconstruction\",\"grouphub:first-peoples\",\"grouphub:flat-chat-no-breast-reconstruction\",\"grouphub:hereditarygeneticmutationandbreastcancer\",\"grouphub:invasive-lobular-cancer\",\"grouphub:lets-talk-about-vaginas\",\"grouphub:lgbtiq-breast-cancer-network\",\"grouphub:livinginregionalruralandremoteareas\",\"grouphub:living-with-metastatic-cancer\",\"grouphub:men-living-with-breast-cancer\",\"grouphub:triple-negative-breast-cancer\",\"grouphub:triplepositivebreastcancer\",\"grouphub:young-women\",\"grouphub:work-and-breast-cancer\",\"board:news-and-events\"]}},\"first\":31})":{"__typename":"CoreNodeConnection","edges":[{"__typename":"CoreNodeEdge","node":{"__ref":"Community:community:nkyiu94732"}},{"__typename":"CoreNodeEdge","node":{"__ref":"Category:category:groups"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:autismspectrumdisorderandbreastcancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:bcna-mod-squad"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:breast-cancer-childlessness-and-us"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:carers-corner"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:christians-diagnosed-with-breast-cancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:choosing-breast-reconstruction"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:first-peoples"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:flat-chat-no-breast-reconstruction"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:hereditarygeneticmutationandbreastcancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:invasive-lobular-cancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:lets-talk-about-vaginas"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:lgbtiq-breast-cancer-network"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:livinginregionalruralandremoteareas"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:living-with-metastatic-cancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:men-living-with-breast-cancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:triple-negative-breast-cancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:triplepositivebreastcancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:young-women"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:work-and-b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The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor.
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AC chemo yesterday","id":"message:205168","revisionNum":1,"repliesCount":21,"author":{"__ref":"User:user:23593"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:side-effects"},"conversation":{"__ref":"Conversation:conversation:205168"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:205168"},"body":"I had my first chemo session yesterday. I was doing ok, had lunch and had a nap a few hours later. I wake up from the nap a little hungry and while waiting for food I started feeling a bit funny/nauseous so I took one of the anti nausea pill I got prescribed and.. it did absolutely nothing! I felt absolutely shit and nauseated for hours and was stuck between bed and bathroom, but I couldn’t vomit anything nor put anything in my stomach. For three times the nausea sensation would also work up until I sneezed loudly? (This was odd as sneezing alleviated me for a couple of minutes before going back to feeling shit). Now, I slept fairly well and a part for a little headache I think I am doing ok, but I am still in bed wondering whether I should get up and have breakfast, wait a little, take the anti nausea pill now before I eat or can the anti nausea pill be the reason I was more unwell? I want to see how I go today and if I can pin point what went wrong before contacting the chemo nurses with the same nonsensical rant.. but also don’t want to be sick again today or ever 🤦🏼♀️😂
any suggestions from the gorgeous women in this group?
I also had just a few tiny red spots (petechiae) pop up around my chest and upper arms, I am not too concerned but glad for any comments (I will certainly raise it with the nurses anyway) as personal experience could definitely help prepare for the nurses vague answer.
💫","body@stringLength":"1476","rawBody":"I had my first chemo session yesterday. I was doing ok, had lunch and had a nap a few hours later. I wake up from the nap a little hungry and while waiting for food I started feeling a bit funny/nauseous so I took one of the anti nausea pill I got prescribed and.. it did absolutely nothing! I felt absolutely shit and nauseated for hours and was stuck between bed and bathroom, but I couldn’t vomit anything nor put anything in my stomach. For three times the nausea sensation would also work up until I sneezed loudly? (This was odd as sneezing alleviated me for a couple of minutes before going back to feeling shit). Now, I slept fairly well and a part for a little headache I think I am doing ok, but I am still in bed wondering whether I should get up and have breakfast, wait a little, take the anti nausea pill now before I eat or can the anti nausea pill be the reason I was more unwell? I want to see how I go today and if I can pin point what went wrong before contacting the chemo nurses with the same nonsensical rant.. but also don’t want to be sick again today or ever 🤦🏼♀️😂
any suggestions from the gorgeous women in this group?
I also had just a few tiny red spots (petechiae) pop up around my chest and upper arms, I am not too concerned but glad for any comments (I will certainly raise it with the nurses anyway) as personal experience could definitely help prepare for the nurses vague answer.
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First AC chemo yesterday","moderationData":{"__ref":"ModerationData:moderation_data:205189"},"body":"Nope. Not a single blessed thing 😒
We do have awesome people though...","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"74","kudosSumWeight":0,"repliesCount":0,"postTime":"2022-03-15T19:23:36.000-07:00","lastPublishTime":"2022-03-15T19:23:36.000-07:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:side-effects/message:205168/message:205189","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"82","rawBody":"Nope. Not a single blessed thing 😒
We do have awesome people though...","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:205189_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:22307":{"__typename":"User","id":"user:22307","uid":22307,"login":"Keeping_positiv","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2019-10-31T04:31:03.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/m_assets/avatars/default/avatar-7.svg?time=0"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:22307"},"ModerationData:moderation_data:205188":{"__typename":"ModerationData","id":"moderation_data:205188","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:205188":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22307"},"id":"message:205188","revisionNum":1,"uid":205188,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"parent":{"__ref":"ForumTopicMessage:message:205168"},"conversation":{"__ref":"Conversation:conversation:205168"},"subject":"Re: First AC chemo yesterday","moderationData":{"__ref":"ModerationData:moderation_data:205188"},"body":"@Kahm your input is great, because some of us don't know about other meds for nausea. I was one who got by with the steroids, although I couldn't sleep, and would sleep only four hours a day for the three days I had to take the steroids. The oncology nurses are wonderful and they did tell me to report if I had any nausea, so my guess was there was alternatives to the steroids. Treatment and side effects have greatly improved for many of us these days, but sorry you had such a rough time. Nothing is fair about cancer, is it? ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":0,"repliesCount":0,"postTime":"2022-03-14T05:10:25.000-07:00","lastPublishTime":"2022-03-14T05:10:25.000-07:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:side-effects/message:205168/message:205188","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"565","rawBody":"@Kahm your input is great, because some of us don't know about other meds for nausea. I was one who got by with the steroids, although I couldn't sleep, and would sleep only four hours a day for the three days I had to take the steroids. The oncology nurses are wonderful and they did tell me to report if I had any nausea, so my guess was there was alternatives to the steroids. Treatment and side effects have greatly improved for many of us these days, but sorry you had such a rough time. Nothing is fair about cancer, is it? ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:205188_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:205187":{"__typename":"ModerationData","id":"moderation_data:205187","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:205187":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:23593"},"id":"message:205187","revisionNum":1,"uid":205187,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"parent":{"__ref":"ForumTopicMessage:message:205168"},"conversation":{"__ref":"Conversation:conversation:205168"},"subject":"Re: First AC chemo yesterday","moderationData":{"__ref":"ModerationData:moderation_data:205187"},"body":"Thank you, @Kahm. I will definitely ask for alternative meds or more steroids. I do not have any trouble sleeping so I could do with an extra kick!
","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"157","kudosSumWeight":0,"repliesCount":0,"postTime":"2022-03-14T03:15:58.000-07:00","lastPublishTime":"2022-03-14T03:15:58.000-07:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:side-effects/message:205168/message:205187","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"165","rawBody":"Thank you, @Kahm. I will definitely ask for alternative meds or more steroids. I do not have any trouble sleeping so I could do with an extra kick!
","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:205187_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:205186":{"__typename":"ModerationData","id":"moderation_data:205186","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:205186":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:23530"},"id":"message:205186","revisionNum":1,"uid":205186,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"parent":{"__ref":"ForumTopicMessage:message:205168"},"conversation":{"__ref":"Conversation:conversation:205168"},"subject":"Re: First AC chemo yesterday","moderationData":{"__ref":"ModerationData:moderation_data:205186"},"body":"Well, you did better than I did on AC.
I was super unlucky and not only did I react really badly to the AC, but the meto did nothing for me. Four hours post infusion I was hurling every 5 minutes. Even the extra intramuscular shot did nothing. Turns out there was a significant medication clash we didn't know about.
I ended up being hospitalised for three days.
ANYway, my sob story isn't the point. The point is that there are other options for treating nausea. If meto doesn't work, ask about extra steroids, or ondansitron, or cyclizine, or whatever. They all have side effects, and they may or may not be right for you, but there ARE options.
","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2022-03-14T02:45:20.000-07:00","lastPublishTime":"2022-03-14T02:45:20.000-07:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:side-effects/message:205168/message:205186","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"708","rawBody":"Well, you did better than I did on AC.
I was super unlucky and not only did I react really badly to the AC, but the meto did nothing for me. Four hours post infusion I was hurling every 5 minutes. Even the extra intramuscular shot did nothing. Turns out there was a significant medication clash we didn't know about.
I ended up being hospitalised for three days.
ANYway, my sob story isn't the point. The point is that there are other options for treating nausea. If meto doesn't work, ask about extra steroids, or ondansitron, or cyclizine, or whatever. They all have side effects, and they may or may not be right for you, but there ARE options.
","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:205186_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:205185":{"__typename":"ModerationData","id":"moderation_data:205185","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:205185":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22307"},"id":"message:205185","revisionNum":1,"uid":205185,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"parent":{"__ref":"ForumTopicMessage:message:205168"},"conversation":{"__ref":"Conversation:conversation:205168"},"subject":"Re: First AC chemo yesterday","moderationData":{"__ref":"ModerationData:moderation_data:205185"},"body":"Wishing you well for the next round. Good you are speaking up as that way you can get the help you need. It can be a tough \"gig\", so keep connecting here and we will support you as best we can. I did 4 AC, then followed by 12 weekly taxol with Herceptin every third week, which continued on for 9 months after chemo finished.. At the beginning it just seems it will never end, but it does and you will surprise yourself how you get through :) ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"218","kudosSumWeight":0,"repliesCount":0,"postTime":"2022-03-14T01:11:40.000-07:00","lastPublishTime":"2022-03-14T01:11:40.000-07:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:side-effects/message:205168/message:205185","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"479","rawBody":"Wishing you well for the next round. Good you are speaking up as that way you can get the help you need. It can be a tough \"gig\", so keep connecting here and we will support you as best we can. I did 4 AC, then followed by 12 weekly taxol with Herceptin every third week, which continued on for 9 months after chemo finished.. At the beginning it just seems it will never end, but it does and you will surprise yourself how you get through :) ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:205185_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:205184":{"__typename":"ModerationData","id":"moderation_data:205184","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:205184":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:23593"},"id":"message:205184","revisionNum":1,"uid":205184,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"parent":{"__ref":"ForumTopicMessage:message:205168"},"conversation":{"__ref":"Conversation:conversation:205168"},"subject":"Re: First AC chemo yesterday","moderationData":{"__ref":"ModerationData:moderation_data:205184"},"body":"Thank you @Keeping_positive1
Thankfully my port seems to work so far. I was very well hydrated on the day, but really struggled to drink or eat afterwords. Hopefully next round goes smoother - I will certainly go in for fluids earlier if I struggle the same.
I hope you are doing well! 💫","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2022-03-13T23:25:22.000-07:00","lastPublishTime":"2022-03-13T23:25:22.000-07:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:side-effects/message:205168/message:205184","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"311","rawBody":"Thank you @Keeping_positive1
Thankfully my port seems to work so far. I was very well hydrated on the day, but really struggled to drink or eat afterwords. Hopefully next round goes smoother - I will certainly go in for fluids earlier if I struggle the same.
I hope you are doing well! 💫","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:205184_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:205183":{"__typename":"ModerationData","id":"moderation_data:205183","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:205183":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22307"},"id":"message:205183","revisionNum":1,"uid":205183,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"parent":{"__ref":"ForumTopicMessage:message:205168"},"conversation":{"__ref":"Conversation:conversation:205168"},"subject":"Re: First AC chemo yesterday","moderationData":{"__ref":"ModerationData:moderation_data:205183"},"body":"I recall I would drink nearly a litre of water just before going for my chemo infusion so they could find the vein easier. I had a problem with my port, so they had to go in via my arm most times. Two ports ended up failing on me!
Another thing I did was each morning I would put a 2 litre jug full of water on my kitchen bench, that way I reminded myself to drink it! Most days I drank it all, and even on top of that I would have a couple of cups of tea or coffee. To this day I still often drink 2 litres of plain water each day.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"213","kudosSumWeight":1,"repliesCount":0,"postTime":"2022-03-13T21:56:08.000-07:00","lastPublishTime":"2022-03-13T21:56:08.000-07:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:side-effects/message:205168/message:205183","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"567","rawBody":"I recall I would drink nearly a litre of water just before going for my chemo infusion so they could find the vein easier. I had a problem with my port, so they had to go in via my arm most times. Two ports ended up failing on me!
Another thing I did was each morning I would put a 2 litre jug full of water on my kitchen bench, that way I reminded myself to drink it! Most days I drank it all, and even on top of that I would have a couple of cups of tea or coffee. To this day I still often drink 2 litres of plain water each day.","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:205183_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:23141":{"__typename":"User","id":"user:23141","uid":23141,"login":"Ausmum2","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2021-03-16T06:38:54.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/HMXYEC7OOU5Z/pWS4JWRN4N7MX.jpeg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:23141"},"ModerationData:moderation_data:205182":{"__typename":"ModerationData","id":"moderation_data:205182","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:205182":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:23141"},"id":"message:205182","revisionNum":1,"uid":205182,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"parent":{"__ref":"ForumTopicMessage:message:205168"},"conversation":{"__ref":"Conversation:conversation:205168"},"subject":"Re: First AC chemo yesterday","moderationData":{"__ref":"ModerationData:moderation_data:205182"},"body":"@Fernweh I found chuppa chups where life for the metal mouth. I’d be sucking them all day everyday :) (the mini ones in the tubes of 25 for $7 from big w were my thing!)
and rinsing my mouth minimum three times a day with the bicarb to help prevent mouth ulcers.
I found that for 48 hours post chemo I completely craved carbs (hot chip sandwiches became my staple ha ha ha) and then it would flip over.
I found I was tired all the time too- but decided that was chemo life and is just be kind to myself and not try to do too much.
Speak with your medical team. I got worded up very quickly to talk to the team about every effect I was having as there was “something for it” and they were as good as their word. Even when the reflux got bad they just gave me more and more stuff to help out. I can’t fault them. If I spoke up, they totally actioned it. So I’ll encourage you the same.
Hang in there.
","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":1,"repliesCount":0,"postTime":"2022-03-11T20:46:08.000-08:00","lastPublishTime":"2022-03-11T20:46:08.000-08:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:side-effects/message:205168/message:205182","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"1037","rawBody":"@Fernweh I found chuppa chups where life for the metal mouth. I’d be sucking them all day everyday :) (the mini ones in the tubes of 25 for $7 from big w were my thing!)
and rinsing my mouth minimum three times a day with the bicarb to help prevent mouth ulcers.
I found that for 48 hours post chemo I completely craved carbs (hot chip sandwiches became my staple ha ha ha) and then it would flip over.
I found I was tired all the time too- but decided that was chemo life and is just be kind to myself and not try to do too much.
Speak with your medical team. I got worded up very quickly to talk to the team about every effect I was having as there was “something for it” and they were as good as their word. Even when the reflux got bad they just gave me more and more stuff to help out. I can’t fault them. If I spoke up, they totally actioned it. So I’ll encourage you the same.
Hang in there.
","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:205182_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:205181":{"__typename":"ModerationData","id":"moderation_data:205181","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:205181":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:23593"},"id":"message:205181","revisionNum":1,"uid":205181,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"parent":{"__ref":"ForumTopicMessage:message:205168"},"conversation":{"__ref":"Conversation:conversation:205168"},"subject":"Re: First AC chemo yesterday","moderationData":{"__ref":"ModerationData:moderation_data:205181"},"body":"Thank you @Ausmum2.
I got some fluids from the hospital yesterday and feel much better in term of nausea, but I am just so tired and the only thing I want to eat is garlic bread and fruit tingles (thanks to whoever suggested it in here!). I will need to try get into the ginger and broccoli wagon. ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":0,"repliesCount":0,"postTime":"2022-03-11T20:27:28.000-08:00","lastPublishTime":"2022-03-11T20:27:28.000-08:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:side-effects/message:205168/message:205181","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"320","rawBody":"Thank you @Ausmum2.
I got some fluids from the hospital yesterday and feel much better in term of nausea, but I am just so tired and the only thing I want to eat is garlic bread and fruit tingles (thanks to whoever suggested it in here!). I will need to try get into the ginger and broccoli wagon. ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:205181_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:205180":{"__typename":"ModerationData","id":"moderation_data:205180","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:205180":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:23141"},"id":"message:205180","revisionNum":1,"uid":205180,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"parent":{"__ref":"ForumTopicMessage:message:205168"},"conversation":{"__ref":"Conversation:conversation:205168"},"subject":"Re: First AC chemo yesterday","moderationData":{"__ref":"ModerationData:moderation_data:205180"},"body":"Hey @Fernweh During AC (and also Paclitaxel) I was on strict instruction to take the mediation whether I thought I needed it or not, the instruction was “take it on schedule”. The other thing I did was eat/drink LOTs of ginger (and take ginger tablets) all day every day (in my case I like ginger so it wasn’t a big deal) and drink 1.5L of water every day.
The other thing I did was eat high protein/low carb snacks every two hours (so never really “a meal” but my tummy was never empty).
I found doing these (and seeing it “as a job” )helped with the nausea and unsettled tummy and helped make sure I didn’t lose (or gain) weight.
Fingers crossed you can find a routine that works for you.
Hang in there.
","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":1,"repliesCount":0,"postTime":"2022-03-11T19:47:03.000-08:00","lastPublishTime":"2022-03-11T19:47:03.000-08:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:side-effects/message:205168/message:205180","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"787","rawBody":"Hey @Fernweh During AC (and also Paclitaxel) I was on strict instruction to take the mediation whether I thought I needed it or not, the instruction was “take it on schedule”. The other thing I did was eat/drink LOTs of ginger (and take ginger tablets) all day every day (in my case I like ginger so it wasn’t a big deal) and drink 1.5L of water every day.
The other thing I did was eat high protein/low carb snacks every two hours (so never really “a meal” but my tummy was never empty).
I found doing these (and seeing it “as a job” )helped with the nausea and unsettled tummy and helped make sure I didn’t lose (or gain) weight.
Fingers crossed you can find a routine that works for you.
Hang in there.
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