Femara, prolia injections osteo

Hello

I have been on femara for seven months now.  The bone pain has been difficult to manage for me.  Some days are good and others are not so good.  I have just begun to take Panadol Osteo on the morning and before bed. As I live in Melbourne I am sure that the cold weather doesn't help.  I attempt to go to the pool every day or walk.  If I sit for too long I seize up.  I have pain in my hands also. I am also taking Vitamin D and calcium every day.  My hair has thinned out considerably too.

I have an injection of Xvega every six weeks. 

Wishing you all the best.

Love

Sandra

xxx

Hi

I have been on Femara for two and a half years. Admittedly my bone density was pretty good when I started. It is still OK. I take calcium and Vitamin D supplements.  I have no bone pain (creaky knees but I had them before cancer!). I was 67 when I started on Femara.

Good luck whatever decision you make.

HI 

I have osteo take prolia had 2 doses with no bone pain.  I had horrible side effects with bone pain from my chemo. 

I am triple negative so no ongoing meds for BC management.

I am happy on it as I broke my wrist it took 10mths to heal.

Meant to say I am also on calcium supplements with Vit D3, magnesium , copper, manganese and go walking every day.

linda x

I finished my chemo back in November. In January this year, I turned over in bed and fractured a vertebrae and rib. Then diagnosed with Osteo. My oncologist thinks I may have already had it and chemo made it worse. He immediately put me on Allendronate Sodium, a once a week pill. I didn't have time to read up about it, but I have now. It's a biphosphonate, NOT good at all. The side effects can be awful. If you read up about it, it can burn the osophoeghus, cause reflux, give bone /joint pAin (side effect I have experienced) and give necrosis of the jaw bone. As my dr pointed out, there is minimal chance of this, however there was 1% chance of having lung problems with chemo and I got that! Yep, probably scared. Biphosphonate stop old bone from dissipating into the body, so new bone growth grows over the top of old brittle bone. Like building a new house on top of rubble. 

I have downloaded a book by Dr Raymond Hinish, called The Osteoporosis Diet. Well worth a read and will explain benefits of diet and exercise the natural way. I have also joined a Facebook site called, osteoporosis the natural way. I believe it's an American site but people hav e joined from all over the world.

my advice would be to read up about it all first and decide what you want to do.

best of luck

Linda xx

Dad is on injections every 3 weeks for his bone cancer as well as his chemo treatments. He gets it done to the skin of his stomach and I think they also add a vitamins booster in the same injection. Not sure if his symptoms are from the injection or just plain cancer but he says getting out of bed in the morning is painful but once he's up and moving about he's ok. He is 76 and doesn't use any mobility aids and lives by himself in a little unit. He's doing ok on his treatment.