Hi everyoneComing to the end of my chemo and struggling. Had doxorubicin and cyclophosphamide every 3 weeks for 3 months then started on a course of taxol for 12 weeks. Neuropathy became too bad so oncologist changed medication to docetaxol every three weeks. I have just had my second (and last) dose of it. Feel horrible. Terrible taste in mouth constipation followed by stomach cramps and diarrhoea, nausea and shooting pains in bones muscles and joints. Have a cold too which isn’t helping.Are these side effects common with docetaxol. Also had an injection to make by bone marrow produce more white blood cells which could be contributing to bone pain.But.... so grateful it was my last one. Have worked partine some weeks but now taking leave because I feel totally spent and need to get my head together.

Hang in there @kmakm. One foot in front of the other. Rest then repeat.

Yuk is an understatement. Horrible, horrible, horrible. No wonder you need time off, you've had a right going over to have all that back to back. Thankfully once your tongue starts to look normal (instead of like a piece of dead grey carpet that has spent 4 years on the floor of a dog kennel) the miserable taste in your mouth goes away. It can still take a while for your gut to settle and the muscle and bone pain can hang around for a bit as well. Be kind to yourself and take some 'me' time. Marg xx

@Lookingup, docetaxel was HORRENDOUS I would be in tears by day 3 with bone pain. The injection gives your bone marrow a big boost to make more blood cells and in effect the overload inside your bones presses on nerve endings in there. It's awful. But, hooray for your last one!! You will hopefully feel a little more comfortable in a few days then you'll need lots of time to recover. Biggest hugs xxxx

Hi @Lookingup So sorry you are struggling. Yes, I had Docetaxel and struggled big time. I had most of your symptoms but not really any nausea. As you probably know, keep an eye on your temp, just in case any of these symptoms turn out to be an infection of some type. That injection for your white blood cells can cause the bone pain as you say. But so does the chemo too.I had 3 lots of Docetaxel after 3 rounds of FEC and it knocked me flat. With FEC I would have a couple of good weeks each time but not with the Docetaxel. The only good thing was finishing it! This last time means that as you recover that will be that. No more!If you have any issues with your temp or your symptoms get worse (particularly the stomach cramps, diarrhoea and nausea) then get it checked. Sometimes it can be a bug you have picked up. Hope you are feeling better soon. Take care. Deanne xxx

I think the carpet in my dogs kennel looks better than my tongue and would probably have more taste than any food I put in my mouth!The day before I had my second dose of docetaxol my tongue started to improve so I know it will get better.thanks for your support.

Docetaxol Yuk! | BCNA Online Network

28 Replies

kmakm
Member
8 years ago
@Zoffiel Thanks, will do.
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Zoffiel
Member
8 years ago
Eye tests are generally bulk billed @kmakm Chemo is not the time to get new specs, but its a good idea to get checked at the end of it.
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Sister
Member
8 years ago
I see him on the same day - bloods taken, appointment with onc, bloods back so he can review them before I go into chemo.
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kmakm
Member
8 years ago
@sister Do you see your oncologist the day before your chemo?
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kmakm
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8 years ago
Don't think I could afford it @sister & @joannie...
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Anonymous
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8 years ago
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Sister
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8 years ago
I did bring up the eyesight issue @kmakm. The onc says it can affect the eyes temporarily - don't get new glasses while you're having chemo!
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duxx1234
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8 years ago
Thanks @Joanie for the link.
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Anonymous
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8 years ago
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kmakm
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8 years ago
Just did a bit of reading @sister. Eye (occular) problems are listed on the EviQ info on TC my oncologist gave me. The EviQ page on AC lists photosensitivity. Did you bring it up with your onc?

Hope things are going smoothly today. K xox
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