Oh dear I feel like an idiot! I thought I had responded to your replies ages ago @"Beryl C." @primek @strongtogether @Nefertari and @Afraser but no, it stayed in Drafts! My brain goes into neutral sometimes. So sorry I didn't mean to be rude. Thank you all for replying. Since my original post the PN has waxed and waned without any drastic escalation in severity. Talked with chemo nurse and confirmed PN is mild atm and that the usual progression is slow from week to week so I continued without a break and have now completed six of the planned nine weekly treatments. So hoping I can get through the last three! @Afraser your situation is what I am trying to avoid and luckily my symptoms don’t include pain so far just mild numbness and sensations. It is interesting about Vit b because I have found out from a qualified source that folate (b6) has a big role in nerve repair. B12 apparently also has to be in balance. I have an appt with her this week so will be getting all the info I can about this. @"Beryl C." You are right about how unique we are. I guess we use other’s experiences to try to gauge the median and then hope like hell we aren’t at the extreme end of the range where it sounds like you ended up you poor thing. I really feel for you. @strongtogether I suspected it was too late to start ice packs so hope I escape. @primek it is truly a balancing act and I will be proceeding very carefully. @Nefertari I am hoping I avoid your experience as well but it is really reassuring to hear that you were able to recover relatively quickly to almost normal. So my fingers are crossed! I hope you all were able to enjoy a lovely Christmas celebration and that 2020 will be a good year for you and your loved ones xx
