Cording

VivW.

Thanks  for that I will go to pool after Chemo finished for sure and only because a few of  the girls have mentioned it.Its not my favorite sport.I was in competitions when young before heated pools and diving into freezing cold water  and doing 20 laps of pool has left a mental scar.WAS NOT FUN . BUT now I will do it for FUN at my own pace no-one pushing me I.'m excited already but have Chemo for another 3 weeks  but have looked up close by HEATED POOL thanks Vivw.

Hi Perky, yes I had nodes removed, this is why I have the blockage.  Scar tissue is like a plug in the lymphatic drain.

Since getting back into the pool I have had no problems, think this will be an annual problem during colder months when not in pool.

All the best,

Viv

Thanks Viv,

I'm posting this for other people needing future direction because it has taken the 5 weeks of looking for an answer  to get here.I'm so glad yours has gone great news I saw a youtube of  the cording you had,  not heard of it till you mentioned it,  looks really annoying.Massage By Heather.com does an Abdomen draiage video.The information below is for mainly ams My impression is you have to do Lymphatic massage for the rest of your life once nodes have been removed.I realise your operation might not have involved this removal.

I've had this for 6 weeks now and it has increased to different areas.Now some lymphoedema is developing.Which is why I'm worried.Have found some useful information from a German website by Elizabeth Josenhans of Hamburg -Step Up, Speak Out and a great video on self massage to drain your nodes which for some reason during the 6 weeks no-one has showen me yet from any of the therapist I've been to they ask if I'm doing the exercises.Lympatic exercise MassageBy heather.com and she has had a lot of hits so I am way behind some people.A wellbeing massage therapist doing Myofascial release has been great, I was reattaching under my arm to my rib area release of this has improved my arm movement heaps & she mentioned I should be doing Lymphatic drainage everytime after exercises.

Sorry I rambled on will do the swimming but still having Chemo at present.  Thank you for all information I take it all in consideration of cure.

perky.

Thanks Viv,

I'm posting this for other people needing future direction because it has taken the 5 weeks of looking for an answer  to get here.I'm so glad yours has gone great news I saw a youtube of  the cording you had,  not heard of it till you mentioned it,  looks really annoying.Massage By Heather.com does an Abdomen draiage video.The information below is for mainly ams My impression is you have to do Lymphatic massage for the rest of your life once nodes have been removed.I realise your operation might not have involved this removal.

I've had this for 6 weeks now and it has increased to different areas.Now some lymphoedema is developing.Which is why I'm worried.Have found some useful information from a German website by Elizabeth Josenhans of Hamburg -Step Up, Speak Out and a great video on self massage to drain your nodes which for some reason during the 6 weeks no-one has showen me yet from any of the therapist I've been to they ask if I'm doing the exercises.Lympatic exercise MassageBy heather.com and she has had a lot of hits so I am way behind some people.A wellbeing massage therapist doing Myofascial release has been great, I was reattaching under my arm to my rib area release of this has improved my arm movement heaps & she mentioned I should be doing Lymphatic drainage everytime after exercises.

Sorry I rambled on will do the swimming but still having Chemo at present.  Thank you for all information I take it all in consideration of cure.

perky.

Hi Perky, 

Sorry it was just one of those things, once I found out what they were and had the massage they just were not there one day.  But it wasn't too long. Sorry this cannot help but there is light at the end of the tunnel.

Swimming was one the main things that has helped with the extra fluid in the body, just getting into the pool with compression of the water seems to work.  Of course if you can do exercise that is even better.

Viv

Thanks for reply Viv,   you did not mention the time span between getting the cording and its cure as I need to return to work that would be of interest to me in planning such an event.

perky.

I had a wide local excision on right side and 5 nodes removed but went back to work 14 days later as no problems.12 days later had 21 nodes removed and damage to Brachial nerve developed coding in degrees started below elbow,kept doing exercices,extended to above elbow,got more exercises,now wrist burns when moved around.I do these exercises every 2-4hours thinking it would help but upon return in 2 hours back to scratch.I had a bout of sickness for a day & did exercises twice only and it was a little worse took longer to relax cords.I have been going to a wellbeing therapist for massage and that has been great her treatment lasts longer than the physio's.Also went to GP as nerves were jumping when I laid down from across  afflicted shoulder blade to other shoulder blade up neck to face.Got Tablets.I do believe my arm would look like a claw if I had not got massage for it which also helps with the Lymphodema that has started this last week,Its 6 weeks now and no sign of getting back to normal I have read some that it can take 6 months and a lady on youtube showing her exercises which I do has been a long time.Her pain is obvious on the video.I want to go back yo work so am putting every effort in.you have to be very pro active its a long time between weekly visits to professionals and these exercises need to be done daily. #Of interest each therapist has given me different exercises they find work best. I have read about laser and thinking last resort still hopeful exercise will work.

Lots of self management needed , you spend all your time with yourself.

yours perky.

I had a wide local excision on right side and 5 nodes removed but went back to work 14 days later as no problems.12 days later had 21 nodes removed and damage to Brachial nerve developed coding in degrees started below elbow,kept doing exercices,extended to above elbow,got more exercises,now wrist burns when moved around.I do these exercises every 2-4hours thinking it would help but upon return in 2 hours back to scratch.I had a bout of sickness for a day & did exercises twice only and it was a little worse took longer to relax cords.I have been going to a wellbeing therapist for massage and that has been great her treatment lasts longer than the physio's.Also went to GP as nerves were jumping when I laid down from across  afflicted shoulder blade to other shoulder blade up neck to face.Got Tablets.I do believe my arm would look like a claw if I had not got massage for it which also helps with the Lymphodema that has started this last week,Its 6 weeks now and no sign of getting back to normal I have read some that it can take 6 months and a lady on youtube showing her exercises which I do has been a long time.Her pain is obvious on the video.I want to go back yo work so am putting every effort in.you have to be very pro active its a long time between weekly visits to professionals and these exercises need to be done daily. #Of interest each therapist has given me different exercises they find work best. I have read about laser and thinking last resort still hopeful exercise will work.

Lots of self management needed , you spend all your time with yourself.

yours perky.

hi there, I have had cording happen twice now,  seems to co-incide with the start of chemo for me.

In Adelaide we have a specialist lymphodema clinic, who treat cording with laser therapy.  from my research it can take 6-8 weeks to reduce normally, and the laser treatment seems to speed that up for me to 4 weeks before it disappears.  I tried this because my elbow gets so tight that i can no longer straighten it, so makes it difficult to carry heavy items or use your arm normally and it can be stabbling like pain - ouch.

A note - not all physio's are aware of this issue of cording also technically named AWS  Axillia Web Syndrome

cheers bardoe

Thanks Rachel

The physio told me to keep up the exercises too.  So I'll keep doing that and stretches and fingers crossed it will get better!

I hope you find the cause of the pain in your arm.  It seems to make sense it's related to the operation doesn't it?

Take care

Amy