Forum Discussion
Sirrah
8 years agoMember
Thanks kmakm and Louise. Yes unfortunately with the dedicated help of my GP I have seen 2 neurologist/stroke/Parkinsons experts who work as a team. They called in Head Speech Pathologist to asses the speech problems, she had no diagnosis but gave me techniques like using rhythm, however speech has worsened. Now speak like a deaf person as tongue placement is wrong.
Surgeon was distressed when she drained my seroma for 3rd time (another issue I just don't need!) at seeing my tremor/speech etc and asked to b sent all reports. However said she was glad that I was seeing someone who was across that speciality because she had not seen it before.
Spent 1/2 hr on phone previous week and 1 1/2 consult last week talking with Oncologist about options. He just wants me to continue chemo as usual and "sort this out later". Have already postponed 3rd chemo on 25/10 chemo as awaiting antibody results from lumbar puncture over 10 days ago! Still waiting! Have to decide if I should go ahead on 8/11 (Oncologist's leeway of 2 wks) or wait 15/11 which was planned 4th A+C but will now only b my 3rd! Family and I not keen to put anything else in body until we have firm diagnosis! Has anyone else had to postpone for any reason and still had a "good preventative" outcome? Any comments so appreciated!
Surgeon was distressed when she drained my seroma for 3rd time (another issue I just don't need!) at seeing my tremor/speech etc and asked to b sent all reports. However said she was glad that I was seeing someone who was across that speciality because she had not seen it before.
Spent 1/2 hr on phone previous week and 1 1/2 consult last week talking with Oncologist about options. He just wants me to continue chemo as usual and "sort this out later". Have already postponed 3rd chemo on 25/10 chemo as awaiting antibody results from lumbar puncture over 10 days ago! Still waiting! Have to decide if I should go ahead on 8/11 (Oncologist's leeway of 2 wks) or wait 15/11 which was planned 4th A+C but will now only b my 3rd! Family and I not keen to put anything else in body until we have firm diagnosis! Has anyone else had to postpone for any reason and still had a "good preventative" outcome? Any comments so appreciated!