Sirrah
I looked like "jumping jackson" onco cancelled rest of paclitaxel.
tell me has it settled since you been waiting?
We didnt complete any of my courses
due to severe reactions
Im like allyjay, im a peppermint ripple person.... I take the weird reactions to a new level.
my treatment ended up being
1x Tac
1x ac
6 x pacitaxel
1x Fec full strength
2x Fec quarter strength
I am over 6 years since diagnosis cancer free
most side effects gone
Hi kezmusc, could you please tell me what the symptoms of your brain reaction to Tamoxofin were? I think there r a myriad of drugs that provoke weird reactions in cancer patients and that is why they say they can't predict how we will be effected, everyone is different!! Yes, we found research about at least 3-6 US cancer patients with my symptoms of speech and gait, one of which had b/c and had cyclophosphamide like I have had. He wouldn't entertain that notion and said no, this is not what u have as US research had called it Parkinsonism(where u have physical but not mental deterioration like Parkinsons Disease). He said we have determined u don't have Parkinsonsism because that is always one side and u have bilateral! I said maybe my body just has it all over. NO u don't fit it! LEts move on and do MRI w/contrast to rule out brain cancer, encephalitis, cancer in brain stem and spinal cord regions. I argued against doing a hasty lumbar puncture as had one during diagnosis for Guillain Barre Syndrome when I was 23 (an auto immune disease) and wanted more investigation. he said "don't u want to know what is wrong with u? We decided to have it and r still waiting for some results after 14 days! I gave the neurologist a list from,Chicago Uni yesterday of drugs I have been given that were causes of problems in this area, specifically myasenthia Gravis which GP had done 1 test out of 2 tests so still not sure, as many symptoms fit like muscle weakness, double vision, eyelid drooping.
The neurologist shocked me when he told me only yesterday that sometimes the cancer sends chemicals to the brain and then the brain can produce several "side effects" that can b different for each person. He says if everything else is ruled out, he is sure it is Functional Nuerological Disorder (FND) and I should b treated with physio, but Oncologist says Brain (independent of my mind is doing it) and I need psychologist
I am so confused!