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But she says I've also got oedema of the whole skin of the breast too. She taught me the correct massage technique to manual drain my lymph nodes- hurt like hell. Wants me to do it 3 times a day for 2 wks then go back for reassessment and if not working then to lymphedema specialist for ultrasound technique. I came home and taught the massage to my husband.. must admit he enjoyed it lol!","customFields":[]},"Conversation:conversation:95195":{"__typename":"Conversation","id":"conversation:95195","solved":false,"topic":{"__ref":"ForumTopicMessage:message:95195"},"lastPostingActivityTime":"2019-05-24T12:49:13.000-07:00","lastPostTime":"2019-05-24T12:49:13.000-07:00","unreadReplyCount":16,"isSubscribed":false},"ModerationData:moderation_data:95195":{"__typename":"ModerationData","id":"moderation_data:95195","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:95195_1":{"__typename":"Revision","id":"revision:95195_1","lastEditTime":"2018-08-16T05:39:11.000-07:00"},"ForumReplyMessage:message:95210":{"__typename":"ForumReplyMessage","id":"message:95210","conversation":{"__ref":"Conversation:conversation:95195"},"author":{"__ref":"User:user:21542"},"revisionNum":1,"uid":95210,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"subject":"Re: Breast oedema","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:95210"},"parent":{"__ref":"ForumTopicMessage:message:95195"},"body":"I have been getting treatment for lymphodema in the breast. Swimming (thanks folks here for recommending that!) and mobiderm have been the most helpful so far for getting fluid down. not sure if folk are familiar with mobiderm - a lymphodema physio gave me a small piece to put in my bra — it’s uneven surface like bubble wrap seems to help fluid to move around. I liked the result so well that I have purchased some from the mobiderm.com.au site. https://mobiderm.com.au/collections/mobiderm-bandage-system - I prefer the 5mm x 5mm stuff but accidentally ordered the 15mm x 15mm, which seems to work ok too, just lumpier. I have also bought several different bras but anything very compressive seems to set the swelling off. I have been recommended someone to try who specialises in fitting bras for lymphodema so I’ll give that a go too. Not sure if others have had good results with mobiderm or not. ","body@stringLength":"1065","rawBody":"I have been getting treatment for lymphodema in the breast. Swimming (thanks folks here for recommending that!) and mobiderm have been the most helpful so far for getting fluid down. not sure if folk are familiar with mobiderm - a lymphodema physio gave me a small piece to put in my bra — it’s uneven surface like bubble wrap seems to help fluid to move around. I liked the result so well that I have purchased some from the mobiderm.com.au site. https://mobiderm.com.au/collections/mobiderm-bandage-system - I prefer the 5mm x 5mm stuff but accidentally ordered the 15mm x 15mm, which seems to work ok too, just lumpier. I have also bought several different bras but anything very compressive seems to set the swelling off. I have been recommended someone to try who specialises in fitting bras for lymphodema so I’ll give that a go too. Not sure if others have had good results with mobiderm or not. 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Accept to continue or {url} it directly on the provider's site.","buttonTitle":"Accept","urlText":"watch"},"localOverride":false},"User:user:21572":{"__typename":"User","id":"user:21572","uid":21572,"login":"Shellshocked201","deleted":false,"avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/036/pG2LIGIU2MPD2.png"},"rank":{"__ref":"Rank:rank:39"}},"ForumTopicMessage:message:191869":{"__typename":"ForumTopicMessage","uid":191869,"subject":"Paclitaxel","id":"message:191869","revisionNum":1,"repliesCount":22,"author":{"__ref":"User:user:22542"},"readOnly":false},"Conversation:conversation:191869":{"__typename":"Conversation","id":"conversation:191869","solved":false,"topic":{"__ref":"ForumTopicMessage:message:191869"},"lastPostingActivityTime":"2020-08-28T01:36:36.000-07:00","lastPostTime":"2020-08-28T01:36:36.000-07:00","unreadReplyCount":22,"isSubscribed":false},"ModerationData:moderation_data:191878":{"__typename":"ModerationData","id":"moderation_data:191878","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:191878_1":{"__typename":"Revision","id":"revision:191878_1","lastEditTime":"2020-05-18T01:07:44.000-07:00"},"ForumReplyMessage:message:191878":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:21572"},"id":"message:191878","revisionNum":1,"uid":191878,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"conversation":{"__ref":"Conversation:conversation:191869"},"subject":"Re: Paclitaxel","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:191878"},"body":"Hi Berchel14, I finished my Paclitaxel last year in June. Its nothing like AC, most of us struggle with AC you are not alone it’s evil.
Pactlitaxel builds up in your system over the weeks that you have it, as time goes on you will get more tired and lethargic, this is normal. Your oncologist will discuss with you regarding neuropathy, which can develop in your hands and feet. This side affect will be monitored closely as neuropathy can be with you for life, so be honest and open with your nurses and oncologist, don’t think that you can just tough it out. Some people don’t get the full 12 rounds so don’t be discouraged if this happens. My last 2 doses were reduced due to pins and needles in my feet and hands.There were ladies that didn’t finish due to issues who were having treatment at the same time as me. Listen to your body and rest when needed, drink plenty of fluids and gentle exercise if possible. During this treatment I was able to get out to the shops with hubby for shopping, I was extremely careful and wore a face mask and was diligent with hand sanitiser. This is something that wasn’t heard of during AC treatment. After treatment finished I felt much better after just after a few weeks, recovery time was much better.
You have done the hard yards, Paclitaxel is a walk in the park compared to AC and Radiotherapy was even easier. Good Luck xx Any other questions don’t hesitate to ask. Sending hugs x
","body@stringLength":"1489","rawBody":"Hi Berchel14, I finished my Paclitaxel last year in June. Its nothing like AC, most of us struggle with AC you are not alone it’s evil.
Pactlitaxel builds up in your system over the weeks that you have it, as time goes on you will get more tired and lethargic, this is normal. Your oncologist will discuss with you regarding neuropathy, which can develop in your hands and feet. This side affect will be monitored closely as neuropathy can be with you for life, so be honest and open with your nurses and oncologist, don’t think that you can just tough it out. Some people don’t get the full 12 rounds so don’t be discouraged if this happens. My last 2 doses were reduced due to pins and needles in my feet and hands.There were ladies that didn’t finish due to issues who were having treatment at the same time as me. Listen to your body and rest when needed, drink plenty of fluids and gentle exercise if possible. During this treatment I was able to get out to the shops with hubby for shopping, I was extremely careful and wore a face mask and was diligent with hand sanitiser. This is something that wasn’t heard of during AC treatment. After treatment finished I felt much better after just after a few weeks, recovery time was much better.
You have done the hard yards, Paclitaxel is a walk in the park compared to AC and Radiotherapy was even easier. Good Luck xx Any other questions don’t hesitate to ask. Sending hugs x
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