Forum Discussion
ellen
14 years agoMember
Arimidex
I have been reading through the blogs about Arimidex and found them very interesting. I have been on Arimidex for 6 months and up until 4 weeks ago, "side affects free" - until now that is.
I now have what appears to be the usual aches and pains in the legs and numbness in the hands, tiredness and headaches, so I guess I didn't escape at all I am just like all my other Arimidex sisters.
I will have to mention this to my oc next visit, but as so many others have said before at least I am here reading the experiences of others. It does help.
Sign in to react to this post
244 Replies
- Bella314Member
That fluid build up would have been incredibly painful; I'm so glad that things are working out; and your true friends have come to the fore! Enjoy your Saturday night. It's such a big step, and yet outsiders would have no idea what you're going through. I also found letting go and accepting help was hard, I have always been independent; but looking from the other side of the coin; friends and family are just wanting to do something, anything...they can't make it go away, but it helps them if we can accept help. Small steps are good.
Bella xx
PS - Is Saturday night your 60th?
Sign in to react to this post Hi Bella, I had trouble with a fluid build up. The Doctor drained over 200ml. from my left side. It is feeling a lot better and I am feeling better in myself. I was just feeling frustrated because it seemed to be ongoing but hopefully things will start to improve. It's made me realise who my true Friends are and that they are very happy to lend a hand. I am hoping to go out on Saturday Night with Friends and to be able to wear my masectomy bra with no pain. I have learnt to relax and go with the flow instead of trying to fight it and be so independant and it works a treat. I able able to achieve small things and it feels great.
Sign in to react to this postHi Bella, I had trouble with a fluid build up. The Doctor drained over 200ml. from my left side. It is feeling a lot better and I am feeling better in myself. I was just feeling frustrated because it seemed to be ongoing but hopefully things will start to improve. It's made me realise who my true Friends are and that they are very happy to lend a hand. I am hoping to go out on Saturday Night with Friends and to be able to wear my masectomy bra with no pain. I have learnt to relax and go with the flow instead of trying to fight it and be so independant and it works a treat. I able able to achieve small things and it feels great.
Sign in to react to this post- KathleenTMemberDear Ruth So happy and relieved to read that you are doing better. I hope you don't have any more setbacks. Rest is important-do a lot of that. A suggestion-I have found that audio books; listened to from a laptop or iPad or tablet are great. Sometimes I go to sleep listening to them, & have to try & remember where I'm up to, but they're a great thing. As well as your average thriller, adventure novel (whatever your taste), there are also self help, meditation, relaxation ones which I find invaluable. I'm so glad you're feeling better-may that continue, so that you can have a wonderful birthday! Love from Kathleen xxSign in to react to this post
- Bella314Member
Hi Ruth, I haven't seen your post about your setback...it seems hard to follow the "thread" sometimes of these posts; but I gather things haven't been good. I'm sorry to hear that. It's hard, but hang in there; and I agree - if you have friends who are willing to help .. let them. It is hard to say "yes" sometimes; we all like to be independent, but I think more importantly we don't want to be a burden on anyone; but those true friends want to help; and if you can say "yes" to them, it makes them feel better, and to be honest, is a practical help to us. It certainly sorts out who your true friends are, that you can count on. I know there are some people who still love us, but shy away; they just can't cope; but hang on to those who can!
Sign in to react to this post Thanks Kathleen and Finita, I am feeling a lot better about it now. It was just so frustrating. One of my Neighbours made me a beautiful, Cancer Angel bear and another put mulch around my rose garden. I had another Friend take me to the markets so I am very fortunate to have Friends like that and my Friends on here who understand what I am going through and support me through it. I am taking it much easier and resting during the day which I realise is necessary for my recovery. There's always another day to catch up and my health is more important. I am now looking forward to my 60th. Birthday at the end of the Month and by then I should be on the mend. Love Ruth xxx
Sign in to react to this post- finitaMember
Darling Ruth, I am sorry about your setback and yes it would be very frustrating, and yes, you must learn to be patient as that is very important for you and your healing process. I am so happy that you are so lucky to have so many wonderful friends that are helping you . It is very good that you have learnt not to be so independant and accept all the help you can get, because it will be for you own benefit, and you deserve as much of TLC as you can get. Sadly when I was caring for my sister , the biggest problem was her not letting go of her independence and that made my time with her very hard and difficult , as I also had to look after my two nephews and her partner. Do continue to take good care and plenty of rest ...must look after No 1 that being you because you are precious and there is only one of you !!
Lots of hugs and love ,
finita xxxxxxxxxxxxxxx
Sign in to react to this post - KathleenTMemberDear Ruth That's awful! Sorry you're having that setback. These are the times one gets a bit "over it all", when just "another little thing" pops up to add to the story. You are showing amazing strength of character and humour through your posts-keep it up! Big hugs from me. Keep venting too. This is such a great forum for it! Love & hugs Kathleen xxxxxoooooSign in to react to this post
Thanks Bella. What you said is very true. We know whart we are fighting. I have had another setback with my op. The Doctor drained over 2ooml. out of my wound Today. It is feling a bit better but is filling up again. It is just so frustrating when I just want to get on with life . I am learning the word "patience" and having a rest every day. I am very lucky to have some really good Friends around me who are willing to help me to get out of the house and go shopping and to the Hospital. I have learnt not to be so independant and except their welcome help. This has been a real learning curve as I realise that I can't do everything myself and there are peole ou there who care and are willing to help.
Sign in to react to this post- Bella314Member
That's very true. Knowing is half the battle; I figure that we have the mutation anyway, so we're better off knowing about it than not; doctors will take notice of a "label" or a name of something; but tend to scoff if you go in there and just say "I'm convinced that ....". Glad to hear your daughter is feeling a bit better today; and don't go down the guilt path because you carried the gene; think about all the good genes you gave her as well! :) xxx
Sign in to react to this post