Forum Discussion

Jenjoy's avatar
Jenjoy
Member
11 years ago

Anyone had micro papillary cancer?

Hi all, been worried sick since yesterday when my Dr said my core biopsy showed micro papillary features. She calmly told me it has a higher recurrence rate and that might aid my decision between mastectomy or lumpectomy. I chose mastectomy.....then I came home and looked up micro papillary cancers and mixed cancers. Now I can't sleep. I know people say you shouldn't believe everything you read online but I read medical journals and studies. This cancer is very aggressive and spreads really quickly. Survival rates aren't so hot either :( Has anyone had this type and if so, what treatment options did you go with and what should I ask my Dr tomorrow when she is organising it all?
side-effects
  • arrow's avatar
    arrow
    Member
    11 years ago

    me too Jen (hope the ride is not too steep). Full of admiration and respect for you - keep on keeping on xoxoxoxo My diagnosis is still not clear. My surgeon is sick and I can't see her until the 25th. From the report, it looks as though more surgery will be needed. Practising being patient and lifted up by your courage. Big hugs girl xoxoxoxo

  • Jenjoy's avatar
    Jenjoy
    Member
    11 years ago
    Thanks for your support arrow, hope you are doing well. Surgery is over and I'm recovering to prepare for the next ride! Hope it's not too steep. Xxxx
  • arrow's avatar
    arrow
    Member
    11 years ago

    ... only just caught up with your news Jen. Roller coasters r us!

    Hang in there lovely girl. My thoughts are with you xoxoxo

  • arrow's avatar
    arrow
    Member
    11 years ago

    ... only just caught up with your news Jen. Roller coasters r us!

    Hang in there lovely girl. My thoughts are with you xoxoxo

  • Jenjoy's avatar
    Jenjoy
    Member
    11 years ago
    Hi Chris, thanks for your kind words...can't wait to meet up for a cup of coffee when I'm mobile again. My surgery was moved up to tomorrow and nerves are under control at the moment. Just don't ask me in the morning haha. See you all on the other side x
  • Jenjoy's avatar
    Jenjoy
    Member
    11 years ago
    Hi Linda...so glad someone else out there has this too, if you know what I mean. My appt today meant my surgery was brought forward to tomorrow! Not super organised for that but are we ever? I am having a mastectomy and know not much else til the final path. So happy you are doing well and yes, it is hard to put your life in someone else's hands but they are the experts as you say. See you on the other side.....
  • LInda21's avatar
    LInda21
    Member
    11 years ago

    Hi Jen

    I had extensive DCIS (111 mm all up) and of type micropapillary and papillary - High Grade as well. I guess I was very fortunate that it was non-invansive, although I did have a scare when I found out there was sentinel lymph node involvement.  This was then down-graded as it is common for these type of cells to become dislodged during core biopsy. 

    So... after two WLE which didn't have clear margins the only option presented to me was mastectomy with immediate TRAM reconstruction - I chose bi-lateral for several reasons I won't go into at this time. 

    I've recovered quite quickly - back to work after five weeks.  No radiation or tamoxifen.  It was hard for me to accept that no further treatment was necessary - but ultimately we do need to rely on the experts, although it is important to understand all the facts presented - and therefore question what isn't understood.  

    Apparently papillary and micropapillary are very rare - lucky us!

    Let us know how you got on at your appointment today.

    Linda

  • LInda21's avatar
    LInda21
    Member
    11 years ago

    Hi Jen

    I had extensive DCIS (111 mm all up) and of type micropapillary and papillary - High Grade as well. I guess I was very fortunate that it was non-invansive, although I did have a scare when I found out there was sentinel lymph node involvement.  This was then down-graded as it is common for these type of cells to become dislodged during core biopsy. 

    So... after two WLE which didn't have clear margins the only option presented to me was mastectomy with immediate TRAM reconstruction - I chose bi-lateral for several reasons I won't go into at this time. 

    I've recovered quite quickly - back to work after five weeks.  No radiation or tamoxifen.  It was hard for me to accept that no further treatment was necessary - but ultimately we do need to rely on the experts, although it is important to understand all the facts presented - and therefore question what isn't understood.  

    Apparently papillary and micropapillary are very rare - lucky us!

    Let us know how you got on at your appointment today.

    Linda