Forum Discussion
2nd Year check up
Hi all,
It has been awhile since I was last here - and that is a good thing, but it is still very awesome that I am still able to come back and talk. Today I am off to the oncologist for my 2year check up. I have had my mammogram, ultrasound and blood test. Today I will get the results of all this and to work out the 'what next'. And there it is ' The WHAT NEXT' - it just doesn't seem to go away, just changes.
I am better with the scans this year, at least I wasn't in tears booking them - so hopefully next year no tears at all. There probably will be some today, as going back into a space that you never want to go back to is daunting, especially as I lost a friend this year to another cancer and we both had the same oncologist and chemo ward staff. This is going to be a massive challenge but I will take my music, and her courage, strength and humour with me.
I am unsure of what will happen, and after having had a parathyroidectomy knowing that I may have to change to a tablet that will affect my calcium levels, and possibly give me bone joint pain is not fun as I have just got rid of all that. I have also got used to the tamoxifen so changing is not one thing I would like to do but if I have to then so be it and on another adventure we go.
Also just wondering does anyone have the sensation in their feet and hands that they get numb tingly fingers and toes, and can't feel them. I have almost cut my thumb off three times - the third should of had stiches but managed to heal. I have also walked around the beach area in summer with no shoes on (have done this since being a kid) and didn't think to much about it, until the next day when I had two giant blisters one on each foot. Mental note: make sure wear thongs this summer.
Over all, very happy with how things are going and only moving upwards from here. I have finally started to foward plan (been a massive issue - still is but getting there) and have re thought work and work hours and work stress. So hopefully in the next couple of years, or sooner, it will pann out and I can be happier, more me and able to spend more time with my friends and family.
Will up date you later on when I can.
Thank you to all those here as this is an amazing space and a safe place to talk and share and vent.
It has been awhile since I was last here - and that is a good thing, but it is still very awesome that I am still able to come back and talk. Today I am off to the oncologist for my 2year check up. I have had my mammogram, ultrasound and blood test. Today I will get the results of all this and to work out the 'what next'. And there it is ' The WHAT NEXT' - it just doesn't seem to go away, just changes.
I am better with the scans this year, at least I wasn't in tears booking them - so hopefully next year no tears at all. There probably will be some today, as going back into a space that you never want to go back to is daunting, especially as I lost a friend this year to another cancer and we both had the same oncologist and chemo ward staff. This is going to be a massive challenge but I will take my music, and her courage, strength and humour with me.
I am unsure of what will happen, and after having had a parathyroidectomy knowing that I may have to change to a tablet that will affect my calcium levels, and possibly give me bone joint pain is not fun as I have just got rid of all that. I have also got used to the tamoxifen so changing is not one thing I would like to do but if I have to then so be it and on another adventure we go.
Also just wondering does anyone have the sensation in their feet and hands that they get numb tingly fingers and toes, and can't feel them. I have almost cut my thumb off three times - the third should of had stiches but managed to heal. I have also walked around the beach area in summer with no shoes on (have done this since being a kid) and didn't think to much about it, until the next day when I had two giant blisters one on each foot. Mental note: make sure wear thongs this summer.
Over all, very happy with how things are going and only moving upwards from here. I have finally started to foward plan (been a massive issue - still is but getting there) and have re thought work and work hours and work stress. So hopefully in the next couple of years, or sooner, it will pann out and I can be happier, more me and able to spend more time with my friends and family.
Will up date you later on when I can.
Thank you to all those here as this is an amazing space and a safe place to talk and share and vent.
13 Replies
- Very happy for your tests being all clear! Yay
- It's funny isn't it human nature! We are the one with the diagnosis but the tables turn as they are the one that can't cope!
We've got this forum to vent and or support as we get it! Don't let the negativity of others get you down
Take care - Thanks Cath just told a friend yesterday abt diagnosis after chemo finished(i hadn't spoke to her for 6 months due to negativity and not keeping secrets or trust)
And she called me,saying I had left some stuff in her garage.I told her,and then gave her time to think.Called back and she said I can't cope I need to take it in.You can't be responsible for people's reaction.That's why these forums are great to say exactly what we feel as others share there experiences brings me support and relief from not holding it all in.LOL - @Debza its awesome that you still are staying positive!!! All the best to you, keep going with that incredible strength :) Xx Cath
- So great to hear the tests are ok! :-) I can only imagine,finished chemo on Wed still going through the yuk constipation,but a few weeks till I start radio,or burns and blisters Still can understand how anxiety is up for all in every stage of . This process,tests,appts,and more People still stay away(family and friends)as they are not coping.They make me feel that being positive is wrong.They have you all in one basket as if a block is ticking,early bc,surg x2 not spread.chemo radio her 2 treatment.Check ups etc.One step at a time.lol
- Hooray, well done! My surgeon doesn't want to see me for a year, which is also good, even though he's lovely. Tablets we can cope with!! I shall be a basket case for the 5 year test, but if all clear, I think a celebration will be in order!
- Fantastic news both of you. Such a relief, I imagine
- Great news Afraser - and mine were good as well. Now postmenopausal so will be giving the exemestane a crack in December. Best news is that I don't have to go back and see the oncologist anymore - I can't tell you what it felt like to hear him say I was being discharged from his care. He is a great guy, but not seeing him is bloody marvelous. If I can't cope on the new tablets then it is back on the tamoxifen for 8 years, or if do do well then it is the other for 5 years. It feels like just one more piece of the puzzle of putting me back together and moving forward.
Thank you all for your news and comments - all been very beneficial, especially while waiting and my head running. My wish is that more of us have a similar outcome. - Thank you for your kind thoughts!! I will sleep really well.....
