2 steps fwd, 1 step back - the joys of neutropenia, reflux, internal bleeding and Vitamin D deficien
Hi ladies
I hope everyone had a nice christmas with family. I had a great, albeit quiet, day. It was day 8 of my first cycle of TCH. I thought I was going really well. No nausea, no real fatigue. Other side effects were pretty manageable. I cooked Christmas lunch for the family and it was a good day. Day 9 started out well, in fact I was boasting about how good I was feeling, then BAM!! Temp 38.6, chills, shivers, aches, pains and needless to say quick dash to hospital. Yep Neutropenic at 0.02 with severe reflux and internal bleeding! Joy.
The hospital staff didn't muck around. I was surprised at how fast they worked on me in emergency. X-rays, and pumped full of drugs for everything including increasing my platelets in order to avoid a transfusion. Antibiotics by IV every six hours. At midnight severe pain, tachycardia and another round of emergency blood tests and meds.
This morning, veins have collapsed. Why?? Been pricked that many times I feel like a pin cushion. Desperately need a a pic line put in but can't due to neutropenia. Sigh.
The nurses have been fantastic and I think I have now seen 8 doctors in 16 hours. The last one was an oncologist (not my treating oncologist). So lovely and understanding. But he told me that my Vit D levels were still low. I had been diagnosed with Vit D deficiency last year but my GP never told me about the link between Vit D and breast cancer. I have been on 2000 mg per day since August this year. This oncologist told me that low Vit D increases the risk of getting breast cancer but also increases the risk of breast cancer recurring. He immediately put me on 5000mg. I asked is there any risks to having too much Vit D and he said no and that he personally takes 3000mg per day. Is this link between Vit D and breast cancer common knowledge to everyone? Why didn't I know about this?
So bored in hospital... tv not working. Leaves me too much time to think. Still have my hair though. There's always a positive.....
Nadine