Forum Discussion
TabooGal
8 years agoMember
Here Goes
Hello. My name is Jenny and I live on the NSW/Vic Border. I have gone to post in here a couple of times but backed out. Denial maybe?
On Wednesday I was officially given the diagnosis of BC. I have had a large lump for around a year but I have 26JJ sized breasts and the lump is down along where the bra wire sits. I put it down to thickening because of the bra wire. I recently started Lite N Easy and after loosing around 10kg I noticed that the lump was much larger than I thought. It has its own postcode ;p Its 5cm x 3cm x 2cm.
So I did the mammo and ultrasound and knew when I called for results, that the urgency by my GP to get me in to see her, that something was very wrong. That day I had bloods, CT scan and was booked in for biopsy. All along I was doing as much research as possible. Armed with knowledge I have always found it easier to deal with things. Must be part of the anxiety I have day in and out.
I met my surgeon on Wednesday who gave me the diagnosis. I was alone at the appointment and was in shock, none the less. I guess I was hoping it was just a mass that they just wanted to remove for safety sake. I do remember asking him what type of Cancer and I vaguely remember him saying Metastatic and that its very common. I am booked in for a lumpectomy and node removal on the 22nd. (Tuesday Week). I am then too do 5 weeks radiation.
I've got all of that in my head and ready to deal with. But now I am reading all of the paraphernalia and Metastatic means I have it in other places in my body? Do they know where? Does this mean I will probably have to do chemo after radiation?
I know I am overthinking all of this and should take it one day at a time. I work 3 days a week and also on partial DSP. Being at work keeps my mind off things. I am planning on taking vacation leave for the rest of the week after my lumpectomy. I am so grateful that my oldest of 2 (daughter) is able to travel up from Melbourne to bring me home from the surgery and stay with me for a couple of days.
Another questions. I had been using implannon rod to control my periods, over the years. The last one was put in around 2011 and is still in my arm somewhere. As I have very thick arms I cant feel it and haven't bothered about it. I believe that it has run out of the hormones anyway after all of this time. Is this something I should tell my surgeon about?
I have so many questions. When will I start radiation? Will someone contact me or do I contact them?
I met my Breast Care Nurse but she was heading on vacation to France the next day. I have the number of another one and I will phone her and make contact with her this week.
It's like my whole life is about the Cancer now. I am being strong in front of everyone else but these times at home alone I am terrified.
Sorry if this is all over the shop but that is how my head works. I have been treated and continue to be treated for Depression an Anxiety for close to 20 years and have only recently found a good balance. The Lite N Easy journey was me actually caring about myself. Some days I shake so much it looks like I am having a min seizure.
Usually I am upbeat and cheeky and able to find the lighter sign of things. But tonight I am low.
Any insights would be wonderful.
365 Replies
- arpieMemberAll the best for your chemo, @kitkatb - I second @Finch's advise - drink heaps of water to flush the chemo out & hopefully the side effects won't be 'as bad' ..... tho be prepared for feeing pretty stuffed, 3-4 days in. Make sure you take the anti nausea tablets etc .... if you fee crook - pop yourself in bed! This is what we did with my husband when he had his chemo. I was lucky & dodged the chemo bullet!
That's terrific you got on so well with your Oncs .... they are such an important part of your life just now.
Thinking of you xxx - FinchMember@kitkatb best of luck with your TC chemotherapy ... I had that also, @"Kiwi Angel" started chemo same day (different cities) and did it together. The first one is pretty scary - I was terrified, but the drugs you're given really do manage the side effects. If they don't you're expected to not suffer in silence but let oncology know so they can give you extra medication. I was fortunate and didn't need anything extra.
My big advice is drink 2 1/2 - 3 litres of water a day. It gets rid of the chemo out of your body quick smart, helps with nausea, constipation and I believe kept side effects for me at a minimum. All the best and big hugs xxx - kmakmMemberYou too @kitkatb! K xox
- kitkatbMemberThanks for the words @kmakm and @"Kiwi Angel" , This BC just bloody sucks but will hang in there. Just the anxiety of the first one. The Oncologists I met were nice, one of them was head of oncology department but both really approachable. They said to start off with the standard 4 cycles with the possibility of going to 6 although they would avoid if at all possible but not to be surprised if it went that way. Unexpected high grade DCIS as well as the grade 3 cancer they removed. It also has unusual characteristics topped with HER+ affect by only 1%. Will let you know how I go. Spent the morning getting my music sorted to take with me as well as a good book. ( I'll probably end up reading the same page over or not even looking at it. Lol) Have an awesome weekend girls. xox
- Kiwi_AngelMember@kitkatb I’m with Kate - that was the chemo I had and it was only 4 rounds - did they say why maybe 6?? Don’t stress about the side effect list - they have to tell u everything that MAY happen. Chemo wasn’t a party but not as bad as I expected. The first was bad cause of anxiety and my 3rd was worst with side effects but everyone is different. I still managed to work somewhat through it. Good luck and big hugs xxoxo
- kmakmMemberI got comped that cut too @kitkatb. Some people are just so kind.
Who told you your TC chemo might be six? That would be quite unusual, the standard dose is four. The 12 weekly cycles after that is Taxol?
There's a TC thread here which a few of us that have been through it this year have filled with questions and answers and experiences. If you want to chwck it out it's here: http://onlinenetwork.bcna.org.au/discussion/18193/tc-chemotherapy/p1
Try not to worry too much about the side effects list. No one gets all of them and while there are some in common, we all react differently. If something is troubling you, don't hesitate to get on to your oncologist to get a different/stronger/better medication to control it.
The first one is the worst simply because it's the unknown. You'll soon settle into the routine. Hang in there, we'll hold your hand all the way through, and then you'll be out the other side. You've got this. Kate xox - kitkatbMemberYikes, first chemo lined up for Tuesday. Having 4 cycles TC but told not to be surprised that it might turn into 6. Then 12 weekly cycles after that. Got the chemo cut out the road and the hairdresser refused any payment. How friggin awesome are some people. Also got the "Side Effect " list from the the Onc. :* Wish I hadn't read the bloody thing. I'll be pleased just to get this first one out the road. I guess main worry is if I have any bad reactions.
Hope you are travelling okay @TabooGal - kmakmMemberYep! Bald last summer, short hair this summer! B)
- kitkatbMemberThanks @Eastmum and @TabooGal , Just one of those days today. Am usually really independent and positive and think its the first day I had a really good Blub on the quiet, Tomorrow is another day hey. Great haircut @TabooGal it does really suit you. It would have been great having a visit from your daughter. Thanks @Eastmum will definitely take my list of questions. xoxo
- TabooGalMember@kmakm Summer is going to be a blast with short hair!