Forum Discussion
TabooGal
8 years agoMember
Here Goes
Hello. My name is Jenny and I live on the NSW/Vic Border. I have gone to post in here a couple of times but backed out. Denial maybe?
On Wednesday I was officially given the diagnosis of BC. I have had a large lump for around a year but I have 26JJ sized breasts and the lump is down along where the bra wire sits. I put it down to thickening because of the bra wire. I recently started Lite N Easy and after loosing around 10kg I noticed that the lump was much larger than I thought. It has its own postcode ;p Its 5cm x 3cm x 2cm.
So I did the mammo and ultrasound and knew when I called for results, that the urgency by my GP to get me in to see her, that something was very wrong. That day I had bloods, CT scan and was booked in for biopsy. All along I was doing as much research as possible. Armed with knowledge I have always found it easier to deal with things. Must be part of the anxiety I have day in and out.
I met my surgeon on Wednesday who gave me the diagnosis. I was alone at the appointment and was in shock, none the less. I guess I was hoping it was just a mass that they just wanted to remove for safety sake. I do remember asking him what type of Cancer and I vaguely remember him saying Metastatic and that its very common. I am booked in for a lumpectomy and node removal on the 22nd. (Tuesday Week). I am then too do 5 weeks radiation.
I've got all of that in my head and ready to deal with. But now I am reading all of the paraphernalia and Metastatic means I have it in other places in my body? Do they know where? Does this mean I will probably have to do chemo after radiation?
I know I am overthinking all of this and should take it one day at a time. I work 3 days a week and also on partial DSP. Being at work keeps my mind off things. I am planning on taking vacation leave for the rest of the week after my lumpectomy. I am so grateful that my oldest of 2 (daughter) is able to travel up from Melbourne to bring me home from the surgery and stay with me for a couple of days.
Another questions. I had been using implannon rod to control my periods, over the years. The last one was put in around 2011 and is still in my arm somewhere. As I have very thick arms I cant feel it and haven't bothered about it. I believe that it has run out of the hormones anyway after all of this time. Is this something I should tell my surgeon about?
I have so many questions. When will I start radiation? Will someone contact me or do I contact them?
I met my Breast Care Nurse but she was heading on vacation to France the next day. I have the number of another one and I will phone her and make contact with her this week.
It's like my whole life is about the Cancer now. I am being strong in front of everyone else but these times at home alone I am terrified.
Sorry if this is all over the shop but that is how my head works. I have been treated and continue to be treated for Depression an Anxiety for close to 20 years and have only recently found a good balance. The Lite N Easy journey was me actually caring about myself. Some days I shake so much it looks like I am having a min seizure.
Usually I am upbeat and cheeky and able to find the lighter sign of things. But tonight I am low.
Any insights would be wonderful.
365 Replies
- EastmumMember@kitkatb - yep those pre-chemo days are really scary when you have absolutely no idea what to expect. Once you’re in the cycle, you learn how your body will respond and it’s then just a matter of ploughing through. There’s some really good info in a few chemo related discussions on here that will give you a really wide range of other people’s experiences. I found that helped me, to at least get some idea, and a ‘bell-curve’ of possible side effects.
Keep in touch and let us know when you’re going to start. Xxxx - kitkatbMemberHi @Eastmum Not sure yet about when. I had my re excision last Thursday so i would imagine about a month to 6 weeks once its healed. A bit worried about about the chemo re all the possible side affects but no doubt that is my over active mind getting ahead of me again as usual. Hope everything is all okay with you. Big hugs xx
- EastmumMemberHow are you doing @kitkatb - when do you start chemo? Xx
- kitkatbMemberHi @TabooGal, pretty much everyone has covered everything here but I just want to say hi and hugs to you. I too am newly diagnosed although I have had my surgery and am healing from that at the moment before the next step of chemo. Its a shame we all have to be here but the support in this forum is amazing and the fact that we can say what we want and how we feel to people who are going through the same thing and understand our emotional roller coaster ride. I found the worst part so far for me has been the waiting between given the dreaded news and waiting for things to happen and to have the first meeting with the surgeon for me it was nearly 3 weeks and like you my mind went into overdrive and you start overthinking everything. I think once you have surgery dates then you will find things will really start to move along faster and you know what will be happening and where you are. All my thoughts are with you and be assured there are some awesome people hear to listen to you anytime. :)
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- kmakmMember:*
- TabooGalMember@kmakm Took the lead from you and we went for a lovely stroll in the sun around a little pond/lake in South Morang. Thanks for the inspiration xxx
- TabooGalMember@Eastmum yes my OC said no to vitamin c too. She said yes to calcium and vitamins D, and probiotics. Good idea about waiting. They are bloody expensive.
- EastmumMemberJust double check with your oncologist before you make a major investment in supplements etc - every doctor is different and many of them don’t allow you to take certain supplements alongside chemo. For example, mine doesn’t allow vitamin C but he’s happy for me to take a pro-biotic.
Xxx - TabooGalMember@kmakm No real plans. Maybe sit out in the sun and maybe go out for dinner tonight. Going to head home tomorrow so I can have a rest day before work on Wednesday. Have a great day. Xxx