Forum Discussion
TabooGal
8 years agoMember
Here Goes
Hello. My name is Jenny and I live on the NSW/Vic Border. I have gone to post in here a couple of times but backed out. Denial maybe?
On Wednesday I was officially given the diagnosis of BC. I have had a large lump for around a year but I have 26JJ sized breasts and the lump is down along where the bra wire sits. I put it down to thickening because of the bra wire. I recently started Lite N Easy and after loosing around 10kg I noticed that the lump was much larger than I thought. It has its own postcode ;p Its 5cm x 3cm x 2cm.
So I did the mammo and ultrasound and knew when I called for results, that the urgency by my GP to get me in to see her, that something was very wrong. That day I had bloods, CT scan and was booked in for biopsy. All along I was doing as much research as possible. Armed with knowledge I have always found it easier to deal with things. Must be part of the anxiety I have day in and out.
I met my surgeon on Wednesday who gave me the diagnosis. I was alone at the appointment and was in shock, none the less. I guess I was hoping it was just a mass that they just wanted to remove for safety sake. I do remember asking him what type of Cancer and I vaguely remember him saying Metastatic and that its very common. I am booked in for a lumpectomy and node removal on the 22nd. (Tuesday Week). I am then too do 5 weeks radiation.
I've got all of that in my head and ready to deal with. But now I am reading all of the paraphernalia and Metastatic means I have it in other places in my body? Do they know where? Does this mean I will probably have to do chemo after radiation?
I know I am overthinking all of this and should take it one day at a time. I work 3 days a week and also on partial DSP. Being at work keeps my mind off things. I am planning on taking vacation leave for the rest of the week after my lumpectomy. I am so grateful that my oldest of 2 (daughter) is able to travel up from Melbourne to bring me home from the surgery and stay with me for a couple of days.
Another questions. I had been using implannon rod to control my periods, over the years. The last one was put in around 2011 and is still in my arm somewhere. As I have very thick arms I cant feel it and haven't bothered about it. I believe that it has run out of the hormones anyway after all of this time. Is this something I should tell my surgeon about?
I have so many questions. When will I start radiation? Will someone contact me or do I contact them?
I met my Breast Care Nurse but she was heading on vacation to France the next day. I have the number of another one and I will phone her and make contact with her this week.
It's like my whole life is about the Cancer now. I am being strong in front of everyone else but these times at home alone I am terrified.
Sorry if this is all over the shop but that is how my head works. I have been treated and continue to be treated for Depression an Anxiety for close to 20 years and have only recently found a good balance. The Lite N Easy journey was me actually caring about myself. Some days I shake so much it looks like I am having a min seizure.
Usually I am upbeat and cheeky and able to find the lighter sign of things. But tonight I am low.
Any insights would be wonderful.
365 Replies
- arpieMember@TabooGal
Well done, girl - tears are allowed - matter of fact - pretty well mandatory, I reckon! It is all about 'letting it out'!! Holding it 'in' doesn't help you at all!!
Keep doing as much as you can (within limits!!) You'll know when to back off!
Be prepared for silly things to cause you grief .... I dropped my bundle a few times over various things ..... but that is OK! There are often small bumps on the road we have to take!
hahah - talking about roads - I've just remembered - I was grabbing my boob for 4-6 weeks after surgery every time I was in the car & saw a bumpy bit ahead ...... I grew to know where all the bumpy bits were on Forster roads & was then 'pre-grabbing' the boob! LOL
Take care & I hope your recovery continues to go well. My surgeon put me onto Kelocote for scar reduction - it has worked brilliantly on me!!
Hope you are having a great weekend!!
(My brother actually suggested I take a series of pics of my boob, before & after surgery ...... I need to do some more recent ones now too!!) - TabooGalMemberLots of tears today. Cleansing. My daughter went home yesterday. She is so vibrant and full of life. On the good side pain is tolerable as long as I don't bend over. Grab my boob to hold in place when I do. Now to get through to Wednesday and my post op app with surgeon. It's only a week after surgery so not sure if path will be available by then. He has to remove the stitches from where they removed the implanon rod. Hope all of you beautiful sistas had a good day. Xxxx
- Kiwi_AngelMember@kmakm I have joined but will know more what questions to ask when I go see a surgeon and know what my options are.
- kmakmMember@"Kiwi Angel" Never heard of them. Will have a look, thanks for the tip. Initially I'll go to a specialist post-breast surgery bra fitter. There's a woman in Port Melbourne who comes highly recommended. I'm really curious to know what my size will end up being!
When you're ready to think about a recon make sure you join the Choosing Breast Reconstruction group here. It's really good. K xox - Kiwi_AngelMemberHoney birdette has some regular 50% off sales and they have some pretty, sexy stuff. That’s one thing sadly I’m not doing anymore with my 1 boob and I have so much pretty underwear. Maybe when/if I get reconstruction.
- kmakmMemberSwelling has noticeably subsided this week. My PS won't touch them for at least six months so I'm expecting quite a lot of change in that time.
So looking forward to lingerie shopping! Having smaller chesticles is going to open up my choice of lingerie massively. I'm looking forward to having some pretty undergarments. - Kiwi_AngelMember@kmakm sounds like a good idea - take the new foobs for a spin. How is the swelling going? U might have to go lingerie shopping when it’s all gone down. U will have more options now.
- kmakmMember@"Kiwi Angel" It's a kid drop off unfortunately! Might do a detour on the way home, there's a frock I want to try on...!
- Kiwi_AngelMember@kmakm enjoy going out for a drive A another piece of getting your independence back xoxo
- Kiwi_AngelMember@kmakm definitely a good idea.