Can not believe it.
Shock, denial, anger - cant imagine how I can move towards acceptance. Newly Dx. Initially was stage 2, then told stage 3 and now looking at stage 4 with lung mets. What the! This roller coaster is ...
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Lots of tears, feelings of hopelessness and now I am sitting back and dealing with the reality that life will never be the same. Stage 4 confirmed hilar lymph node positive on EBUS which likely means the lesion seen in my lungs is Mets. So I am apparently now classified as a De nova stage 4.
Seeing oncologist tomorrow to work out if there are any trials to jump on board or take the plunge and start ribociclib and the hopefully long journey in this alien new normal of living with this.
In the last month I have endured every radiology test and form of radioactive dye known to mankind. I have had scopes plunged down deep into my lungs. I have had more medical appointments in this last month than I have had in my entire life. I have read and listened to everything and anything I can find to educate myself, I have mastered the Iptass forms for remote and rural travel and the learning curve continues.
So glad there are so many forums, educational tools and pro active members to learn from and can hear us out. This journey is not OK, but knowing (although sad) there are others out there who have travelled this path ahead of us and others travelling along side us makes the journey a little easier. I can not imagine how my mother dealt with her grief and pain on her cancer journey 40 years ago when talking about it was taboo and resources non existent. Here’s to a more positive week and a glimpse of normal for a while.
In the last month I have endured every radiology test and form of radioactive dye known to mankind. I have had scopes plunged down deep into my lungs. I have had more medical appointments in this last month than I have had in my entire life. I have read and listened to everything and anything I can find to educate myself, I have mastered the Iptass forms for remote and rural travel and the learning curve continues.
So glad there are so many forums, educational tools and pro active members to learn from and can hear us out. This journey is not OK, but knowing (although sad) there are others out there who have travelled this path ahead of us and others travelling along side us makes the journey a little easier. I can not imagine how my mother dealt with her grief and pain on her cancer journey 40 years ago when talking about it was taboo and resources non existent. Here’s to a more positive week and a glimpse of normal for a while.