Just as another thought @Mellyb - have you been tested for the DNA mutation that has caused your cancer. If you know what the mutation is, there may be some drugs in development that may target your cancer type. For example, I know my mutation is in the AKT-1 gene and thus Everolimus worked brilliantly until I developed pneumonitis and had to come off that drug. I know there is an AKT-1 inhibitor in development and that my oncologist can get a hold of this drug if need be. You can get DNA testing at Peter Mac. Not sure how much it costs, but my guess is around the $600 mark and of course there is no medicare rebate at the moment. Hope you are staying positive! xxx