Forum Discussion
What do bone Mets feel like?
Hi Gals
I was diagnosed almost a year ago with stage 3C DCIS - (Beryl for those in the know!) Beryl was pretty busy and managed to have 13 not so darling babies (lymph nodes). So a mastectomy was on the table and as I was awaiting test results for BRAC gene I decided to go for gold and do two for the price of one - I do love a bargain!
Results of the test came through the day after my surgery and I was indeed positive for BRAC2 gene.
So Beryl and her kids had been rendered homeless and I had the usual chemo, rads and AI’s to ensure they did not come back. All was good until about 3 weeks ago when I started to feel persistent pain in my rib (same side that Beryl and the kids popped up on). I have a CT scan on Friday but just wondered if anyone could describe the pain. I have pain that comes and goes (mostly there) and goes from a sharp pain to a dull ache. I am hoping the Beryl has not decided to return!
Any advice?
I was diagnosed almost a year ago with stage 3C DCIS - (Beryl for those in the know!) Beryl was pretty busy and managed to have 13 not so darling babies (lymph nodes). So a mastectomy was on the table and as I was awaiting test results for BRAC gene I decided to go for gold and do two for the price of one - I do love a bargain!
Results of the test came through the day after my surgery and I was indeed positive for BRAC2 gene.
So Beryl and her kids had been rendered homeless and I had the usual chemo, rads and AI’s to ensure they did not come back. All was good until about 3 weeks ago when I started to feel persistent pain in my rib (same side that Beryl and the kids popped up on). I have a CT scan on Friday but just wondered if anyone could describe the pain. I have pain that comes and goes (mostly there) and goes from a sharp pain to a dull ache. I am hoping the Beryl has not decided to return!
Any advice?
36 Replies
- Hi I have bone Mets . The first pain I got was muscular, I now know it was my body protecting the area of my spine that had disease . It was severe and persistent nothing would stop it physio was a waste of time. I then got really bad spasms in my neck. The bone pain started once I had been diagnosed. It is hard to explain except to say it was different to any pain I had ever experienced. It took 6 months for mine to be diagnosed, I was 10 years cancer free. My advice is if any pain is persistent insist on an X-ray of the spot. That is what I ended up doing. My doctor was devastated that she did not pick it up earlier.
- Thanks everyone got the love will update uounext week x
- All the best for Friday :)
- Welcome to the blog, @Majellablue - SO sorry to see you here, but it is the best place to be to ask any questions of the group & get honest answers - as we 'get it'.
I was checked late last year for persistent pain in my pelvis - and got the all clear - but am very aware of any new persistent pains as they present. :( Sadly, it is all a part of this bloody disease & a side effect of the AIs we are on.
I actually asked my Onc about the 'pain that could indicate Mets' - and she said that it is a deep seated persistent 'different' pain to 'general aches & pains' that we get from AIs ..... but advised to get anything investigated if it lasts longer than 1-2 months.
All the best for your CT on Friday - fingers & toes crossed for a good result. xx
and best wishes from jennyss in Western NSW- I can’t answer your question but I have my fingers and toes crossed for you that there is nothing nasty going on xx
